Tuesday, June 28, 2011

Finally a baby DAYTIME SOAP STAR with Down syndrome!

Fantastic story of a new little guy just a few months old got the part as TV Soap Star!! All I have to say...."IT'S ABOUT TIME!"

When will there be an AMERICAN Daytime Soap Star with Down syndrome? Wouldn't THAT be something for all of us to 'watch' how the story line grows and unfolds? Come on GENERAL HOSPITAL!!!!

SOAP STAR! - Local - Ballymoney Moyle Times
CLICK THE ABOVE for complete story ~ Enjoy!

Monday, April 18, 2011

Friday, April 8, 2011

Saving another High School Diploma for someone!!

Going today to help save another high school diploma for someone! I swear....the weeks that lead up to students taking the Florida FCAT exam our IEP "teams" get geared up and start getting my parents all excited about an IEP meeting....and the bottom line reason for these meetings is to ask the couple of questions to the "IEP TEAM" and to get that student off the regular diploma track!...so they don't have to give that student the FCAT! I say....they need to change their ATTITUDE towards certain individuals that have a certain disability and have HIGHER EXPECTATIONS and continue to teach them to the Sunshine State Standards and do a better job of teaching ALL students with disabilities!!

What is with our Public School system today that they are so quick to put students on the SPECIAL DIPLOMA TRACK and have them take the ALTERNATE ASSESSMENT? I don't get it....why would anyone want to attend school for so many years and in the end they don't even get a HIGH SCHOOL DIPLOMA!? Who ARE these people sitting around our IEP "team" tables making life long academic decisions on behalf of our Children!

If you ask me.....that SPECIAL DIPLOMA is NOT so.......SPECIAL IF IT'S NOT A DIPLOMA AT ALL!! What parent wants to send their Children to school everyday and in the end they are working towards a NON HIGH SCHOOL DIPLOMA? I don't know many that would say yes to that! Our Children need a HIGH SCHOOL DIPLOMA!! Teach them to be able to get one!

Anyway....wish me luck in advocating for this very smart little guy that has been doing a wonderful job  academically. I am impressed with how well he has been doing in school. He has always shown us that he CAN DO IT!

Friday, April 1, 2011

Down syndrome Inclusive Educational Strategies

Schools who let one criterion, such as a specific disability, automatically determine the placement are likely to be held in violation of federal law.
Supreme Court - Board of Education v. Rowley ~

"Inclusion is a right, not a special privilege for a select few".
Federal Court - Oberti v. Board of Education ~


"Separate educational facilities are inherently unequal"
Supreme Court - Brown v. Board of Education ~


All children with disabilities are to be educated to
the "maximum extent" with children who do not have disabilities.
~ Federal Law I.D.E.A. Sec. 612.5 (A) ~





Elementary & Secondary Education - Tips for Teaching Students with Down syndrome
http://www.ndss.org/index.php?option=com_content&view=article&id=58&Itemid=83&limitstart=2

Tuesday, March 1, 2011

A for Accountability Award!

A for Accountability Award - we all should be working on this award!
Read over on the RIGHT HAND SIDE of this link (in the blue)...interesting reading for sure!

Everyone one of us needs to speak up for what is true and right!

Parent Advocates.org is a great resource - enjoy!

http://www.parentadvocates.org/index.cfm?fuseaction=article&articleID=484

Thursday, February 24, 2011

Advocating ~ means being on your toes...

Advocating...

You are their first teacher of every little thing 
Celebrate big & small accomplishments
Stay up-to-date with current information
Be CONFIDENT in your parenting role
Praise & be Joyful in the little things
As a parent you do not get a day off 
Work together for the common goal
Being on your toes.....ALL the time
Stand tall knowing what you know 
Have good working relationships
Share with others your concerns
Educate one person at a time
Meet others in the same boat
Go to trainings & conferences
Attend National Conventions
You know your Child BEST 
Speak up for your Child
Guidance for Safety
Positive redirection 
Praise to success
Protect your Child
Share solutions
Be organized
Help others
Be strong
Volunteer
Smile
Love
Hug
Cry
'o)



Created by Nancy Linley-Harris
Feb. 24, 2011

Tuesday, February 1, 2011

IEP's & School books online via Broward's PORTAL.

http://www.broward.k12.fl.us/casdl/textbooks/index.asp

This is the PORTAL you absolutely should know how to access. This is where you can view your Child's school TEXTBOOKS and IEP's. Be sure you know your Child's SCHOOL ID# by heart. You can find your Child's ID# on the IEP and report cards.

Enjoy!

Sunday, January 16, 2011

What exactly are the DD Medicaid Waivers?

What exactly are the DD Medicaid Waivers?

MEDICAID WAIVERS ~ fldd resources.org

If you still have not filled out the forms to have your child signed up and on the Medwaiver WAITLIST, here is the link with all the resources to help you with the process. JUST DO IT and get all the paperwork turned in and get going with it. If you need help or have questions and need help, please feel free to contact me and I would be happy to assist you.

Remember for the Developmental Disabilities Medicaid Waivers it is only for 5 specific documented disabilities:
1. CP
2. Autism
3. Spina Bifida
4. Mental Retardation
5. Prader-Wili syndrome
Sign up starts when the child is 3 years old,
don't keep putting it off...JUST DO IT!


http://www.flddresources.org./html/medicaid_waivers.htm

Tuesday, January 11, 2011

Pledge for Parental Involvement

Pledge for Parental Involvement

I pledge to support my child's education
to the best of my ability.
I will have high expectations for my child
to succeed in school and in life.
I will make my child's education a priority,
and model positive actions and attitudes.
I will partner with my child's school
to ensure I am informed and involved
in all aspects of my child's education,
and I will be an active advocate
for my child's education.
I understand that education is the key
to success, and will do everything I can
to nurture my child's ability to learn.

*November is Parental Involvement Month
I received this saying at a Title I Parent Training

Thursday, January 6, 2011

Is she getting a good education today?

Just when you think you have the kinks out of all the school issues and things are running smoothly, something tugs inside of you to keep doing what we do and that is to continue to STAY ON TOP OF EVERY LITTLE THING that is or is not happeing at school with your Child, in my case with Mariah. When it comes to making sure our Children are being taught....really taught how to READ, WRITE & DO MATH, we have to continue to keep the lines of communication wide open regularly!

 
With the long Christmas Break finally over and the New Year finally here...the first week of January is my time to send out a few emails to both Mark & Mariah's teachers and ask a few questions and make request for some help in a few of my areas of concern. I believe if parents get too comfortable with NOT being in contact with our Children's teachers and they don't have regular parent/teacher conferences or some kind of contact either small phone chats or emailing them it is easy for our Children to not be provided the support they need to help them learn.



I started my emailing the first day they were back in school and WOW what a whirl-wind of positive things start happening! When I inquire about certain things and they get back to me, it helps me know where I need to keep ON TOP OF THINGS better.



Parents if you haven't had a parent teacher conference in awhile or yet this year...absolutely it is time set one up and get reconnected to all the different teachers and have some discussions.



Emailing is my 'mode of communication' that I prefer to use when wanting to touch base and ask some questions on how things are going. I'm sure there are some teachers that dread any email coming from me or some parents, but to be honest..emailing teachers is the surest way to get the ball rolling with some good conversation about YOUR Child and how things are really going at school.



I encourage each of you to make contact with your Children's teachers & ESE Support people right about now, the first weeks of the New Year. Spring Break is just around the corner and in Florida we have the Standardized test called the FCAT. When its just before FCAT, that is ALL that is going on at school...preparing everyone how to do well on it! The end of another school year will be here before we know it. Make it a priority to keep good communication happening all the time with their teachers. Sending out an email once in awhile to get updates on some things is a good thing.



Set up a PLANNING MEETING with your Child's teachers, this is not an IEP meeting. This is a meeting that is alot more casual and free flowing with conversation about what's working, what's not working and what are some of the challenges teachers and you both are seeing. What are some of the wonderful things that are going on at home and while in school. I love doing MARIAH PLANNING MEETINGS in the middle of the school year especially when everyone comes to the table with an open mind and willing to share ideas and some possible new changes to how things have been going.



Right now, things are working out wonderful for Mariah's 5 grade year. She has 3 great teachers that are all good at emailing me back. The beginning of the year didn't start out so well because Mariah's homeroom/reading & math teacher refused to ever talk or communicate with me! She may have been good teacher but if she couldn't provide any parent/teacher communication...ever...not one email was ever replied back to, not one phone message I left for her was ever returned. I was a wreck at that time because of it! I wanted to have a parent/teacher conference around the 5th week of school just to touch base and discuss how things were going. We were having some MATH issues going on at the time. Needless to say, I finally had that parent/teacher conference close to the 13th week of school! If she wasn't going to ever talk to me than I guess I needed to be able to observe her classroom and to see how she worked with my daughter. What I saw during that classroom observation was my daughter being fully segragated and not included at all!! I was so upset by then that I had already spoken to the Principal and requested for a new teacher for my daughter.

Not only did Mariah get a new homeroom teacher, she got a new MATH teacher as well! Ever since the switch of teachers I have not had a problem with being able to communicate and have Mariah's teachers email me back. The classwork she brings home now tells me she is being provided an opportunity to be part of the classroom lessons and to do the best she can. She is learning so much this year in 5th grade!



If things don't seem right, chances are they aren't right! When things sent home from school show you that real learning took place, that is a great sign!. If you ever have a teacher that refuses to collaborate and communicate with you about your concerns for your Child's education and is unwilling to work with you on a regular basis, put in for a teacher change as quickly as you can! The school year goes by way too fast to waste a week or a month or a couple of months trying to make things work out with someone that probably doesn't believe in your Child like you need them to anyway. It's not about worrying about hurting someones feelings...it's about YOUR CHILD getting a good education and being able to have a good parent teacher relationship! If you have a teacher that doesn't give YOU the time of day...trade em in for a different one - QUICK!! It's all about PARENT INVOLVEMENT & if you have a teacher that doesn't want that or get that...request for a teacher that does! 



Mariah's new teacher is an absolute delight to work with! What a breath of fresh air to be able to have a teacher that actually wants to say hi to me and give me friendly updates about my daughter and on classroom stuff. It was not a fun time for me to have a teacher that refused to have any conversation with me about my daughter, it was something that totally took me for a loop, I just never expected it. *Isn't it part of a teachers job discription to talk to parents? .......sometime? 



Is she getting a good education today? Well..I know she loves going to school everyday and I know she has a good handful of nice friends that truly care about her. Her teachers are good people and they are doing the best they can helping my daughter do her personal best while she is in their classrooms. When parents & teachers are able to work together for the sake of the Child that is when everyone is learning! Teachers that embrace inclusion and aren't affraid of parents that want to be involved are the teachers become just better teachers because of it! Inclusion and having students with significant learning challenges in General Education Classrooms is not easy, I won't lie, but it is rewarding and at the end of the school year, that teacher with the open mind and the desire to teach ALL CHILDREN is the better teacher by far!! (Can I have an amen!) 



Having a student with Down syndrome fully included in a General Education classroom is not something that just happens overnight...it takes lots of collaboration and work from both parents & the teachers and it takes having 'talks'...either in person by having little planning meetings or shooting an email once in awhile or even a quick friendly phone conversation. Parents don't be affraid to have a NON-IEP PLANNING MEETING for your Child, some of the best ideas and ways your Child learns or how the teachers present lessons are talked about at these meetings.



Everyone touch base with your son or daughters teachers and get an update on things. Have a wonderfully productive January and a Healthy New Year!
 
www.dsadvocate.com

Monday, December 27, 2010

Monday, December 6, 2010

Saturday, October 2, 2010

Inclusion is a Crazy IDEA?

People have a lot of different crazy ideas on what INCLUSION really is or what it should look like in a classroom or on a school campus. Inclusion is not a place, it's not sitting seperately away from other students, it's not a seperate classroom or going to visit a special teachers classroom and then going to the cafeteria to eat lunch in the same room as other students and then not sitting with your Gen. Ed classmates!

Inclusion is a community, it's a community that is accepting of differences and of everyone no matter what! Inclusion is a place where everyone is accepted and valued just as they are! Classrooms are made up of individuals, everyone is different and unique with different learning styles, hopes and dreams for their future! Inclusion is all together all the time! INCLUSION WORKS!

Monday, September 27, 2010

Consideration of Assistive Technology at IEP's?

DOES EVERY IEP TEAM NEED TO CONSIDER THE NEED FOR ASSISTIVE TECHNOLOGY???

YES YES AND YES!!!

BUT DO THEY..?

ABSOLUTELY NOT AND TO GET OUR DISTRICT TO COME OUT AND DO AN 'AT TECH ASSIST' IS LIKE PULLING TEETH....THIS IS WRONG!!

OUR CHILDREN NEED ASSISTIVE TECHNOLOGY YESTERDAY!!


http://www.broward.k12.fl.us/studentsuppor...t/ese/PDF/QuestionsAboutAT.pdf

Friday, September 10, 2010

Horses and the Handicapped Program 9/9/10




This is Mariah's 1st day back riding....the Summer break was too long to be away from riding! She was in such a great mood all day knowing she was going to be riding  STAR later. When we got there it was so good to see all her friends and her mommie's friends. Being back in class with her favorite girlfriends was the best! To see Sam, Caroline, Katie and Mariah all back together in the same class made ALL of us so HaPpY!! These girls have been riding together for years. Mariah has known Caroline & Katie back when they were little tiny new babies and Sam, Mariah met her at another riding stable when they both were real young, guess they have been riding together for maybe 6 years now.


In this video clip they had just gotten back from trail riding and were ending the class. They all looked great sitting high up on there own horses together again. This was taken using my iPhone! I am amazed at how easy it was to capture this quick snippet and post it to facebook so easily! I love my iPhone!!

Wednesday, September 8, 2010

BENSON goes to NOVA E ~ finally!!

(Below is an email I received from BENSON'S mom - just had to post here!)

Well I like to thank you Nancy for finally making it happen.... Benson is in Nova E Elem. like he was suppose to be last year because his name was picked out of the lottery. His 3 older sisters attend Nova too! He wasted a whole school year in a cluster program at another school in Broward! Oh sorry, not a whole school year, I forgot the 2 months that Broward County schools district left him behind without being in any school! I refused to let them force me to put my son in school I did not want him to go...his name was picked from the Nova E Lottery...that is where he was registered to go for Kindergarten...I went to the Kindergarten Round Up! Funny Nancy how they kept telling you and me how they had no record of him being registered there. How do they lose registrations of children after school starts?

I learned many things this past year:
1.) 90% of the people that say they know what is best for Benson, had never meet him.

2) there are beautiful laws that look good on paper, but make them work it is almost impossible.

3) definition of inclusion in broward county schools is a special need child inside a regular classroom as a guest and if possible far away from his peers.

4) discrimination from students toward special needs children starts with the way teachers introduce them to the peers.

5) if we could have more like "Nancy Harris" to advocate for our kids, cluster classrooms would be history, well maybe not for all but for those with Down syndrome anyway...

I don't really know how it will be at Nova E this year, I don't know how inclusion works in this school, what is the level of acceptance, but at least Benson is happy for now and that counts a lot for me and my family. I know we still have a long way to go, because while ignorance predominates the fight never ends for me to have good help for Benson to get an education in Broward Public schools. I am hopeful soon they will get it right and help me with my Benson because everyday is important for his education and his future success.

Thank you Nancy for not giving up on me or my son this past year!

Daniele ~ Benson's Mom

Wednesday, August 25, 2010

HOMEWORK POLICY ~ Broward Public Schools

HOMEWORK POLICY ~ Broward Public Schools
Hope this link (click above) is helpful!
It would be a good idea to print out the HOMEWORK POLICY and keep a copy handy whenever you have a parent teacher conference and need to make reference to your Child's homework. This policy says it all and I'm sure will be very useful for many!

Did you know it is suggested that the total time to do homework should be 10 minutes per the grade. So say a 5th grader should have a TOTAL of 50 minutes of homework and say a 9th grader should have a TOTAL of 90 minutes of homework assigned per day.

This homework policy was written by our school board members....let's be sure our Children benefit from it! Are teachers and staff aware of this policy and what it says? Tell another parent about this policy and share the link with them so they too can print it out and know what this policy states.

Enjoy!

Monday, August 23, 2010

Where is BENSON? ~ You remember BENSON....

For those of you that have been following my blog for awhile...you may remember a little 6 year old boy named, BENSON. He has Down syndrome and was being totally discriminated against in the fact that our school district would not allow him to attend a regular general education Kindergarten classroom. Why not? Because our wonderful IEP team members that are hired by our Broward School District insisted on having certain district 'assigned' individuals DICTATE to the mom exactly how much time her son would be removed from general education classrooms, it was written in stone that he needed to be 100% ESE Special Education classroom...we call that a CLUSTER classroom.

This little guy has 3 older sisters that attend a NOVA school and another older sister that graduated from a NOVA school. BENSON'S mom of course wanted her son to attend the same NOVA school all her other Children go to, so she signed BENSON up to be on the NOVA LOTTERY! He was put on the 'sibling Nova lottery list' and guess what....HIS NAME WAS PICKED!!! BENSON'S name was picked from the lottery and mom was delighted! It was a HaPpY time for the mom, his sisters and others that knew how much it meant to this family that BENSON be able to attend the same school and ride the same bus as his 3 older sisters! It was cause for celebration for sure! To be picked from the NOVA LOTTERY SYSTEM was an accomplishment few get! She registered him at NOVA and then attended the KINDERGARTEN ROUND-UP at the beginning of last year...just 2 days before she was told that the school did not have a 100% ESE ROOM for BENSON to be in, so mom was told he could not attend their school now...that was such a blow to everyone's plan for BENSON and his sisters!
\
Back at the beginning of the school year last year, I did several BLOG postings pertaining to BENSON and the stories that pertain to all the shenanigans that he and his mother had been put thru this last 2009-2010 school year at SNEAGLE RIDGE ELEMENTARY School. So much NONSENSE that no parent should ever have to put up with when dealing with the school we entrust our Child to!! That school absolutely needs to have some disability specific trainings and certainly needs to have the entire administration and its general education teachers taught POSITIVE INCLUSION TECHNIQUES AND STRATEGIES. The Gen. Ed. "nice" Kindergarten teacher BENSON was assigned, refused to even make simple EYE CONTACT with him on a regular basis, this was observed on several occassions. That teacher absolutely refused to INCLUDE BENSON to even the smallest degree...her attitude was carried over to her young students in that they all were 'on the look-out' for any little thing BENSON might do....those students followed her 'fine example' to DISCRIMINATE and not accept BENSON, just because he was different and had  Down syndrome. The opportunity and the lessons that teacher missed teaching all her students is lost...his 'regular Kindergarten classroom peers' missed out on a very valuable lesson called....ACCEPTANCE...acceptance for those that are a little different than you and me. BENSON WAS NOT INCLUDED IN GEN. ED KINDERGARTEN this last school year at Sneagle Ridge...because his Gen. Ed teacher and the staff and administrators mind-set is behind the times in that they just don't get it...they are not interested in getting it either!! How do I know this? Because I was by this mom's side the entire school year with trying to communicate to BENSON'S school and trying to create a well written IEP and trying to get the supports and services BENSON needed! This school very much BELIEVES in clustering students with disabilities into seperate classrooms and when they on occassion blend two Kindergarten classrooms together I saw with my own eyes the attitude not only from the administration, but more importantly from the other classroom students. They did not want to sit 'too close to those students' on the carpet during a blended class time inside the library for Media Special.

The students with disabilities are pretty much taught all together in their own Special Needs classroom, not mainstreamed or included. BENSON'S mom wanted her son to be given the opportunity to learn along side typically developing classmates so he could learn from them....so he could copy what they were doing. She knew that....yes he absolutely needed help and assistance especially to help him to follow classroom rules and to keep his hands to himself and not touch others. The assistant and the ESE teacher at this school very much believed in frequently giving fish crackers and/or Cheetos throughout his entire 'school day' as the way to get BENSON to 'learn'.....this was sickening to watch being done...YES BENSON liked the food treats, but it so wasn't written on his IEP whatsoever to use food reinforcements to get him to comply! Did anyone read his IEP? Where did that come from or is that a way some teachers were taught they had to do for certain individuals to motivate them to stay on task? I think that way is great for DOG TRAINING for sure!

Since BENSON had only been provided the most minimal of opportunities to be part of a General Education Class room, I saw with my own eyes that not much of any real Inclusion was practiced at this school. NEVER would I ever recommend this particular school to anyone ....especially for a child with a disability like Down syndrome! The Administration's mindset is out dated and discriminatory. Inclusion is not encouraged or understood at SNEAGLE RIDGE ELEMENTARY, and because of that I would absolutely request that this school be provided with QUALITY Disability Specific Training and also to have FIN-Florida Inclusion Network provide all the teachers and staff with POSITIVE INCLUSION STATEGIES Sessions! Oh and I absolutely would never recommend this particular school to anyone!!

This school is only one of many across our Country that have this same outdated way of thinking about our little kiddo's and their ABILITIES to learn to READ, WRITE & DO MATH! I am a firm believer that with the right teacher with an open mind and lots of room for flexibility to the way they have always 'taught' classes...our kiddo's require a lot of being flexible yet being firm with what your expectations are about each Child....the point is....TREAT OUR CHILDREN WITH RESPECT AND TEACH OUR CHILDREN TO READ AND DO MATH AND ALL THE OTHER WONDERFUL THINGS A CHILD ATTENDS SCHOOL FOR!

The time is now, our Children's future depends on everyone DOING THEIR PART in providing a FAPE and BELIEVING in them that they absolutely are capable and able to learn just as anyone else....yes it might be at a slower pass or a different way. Bottom line is...everyone has the right to be taught along side their neighborhood friends, in their neighborhood school. Let's start doing the right thing for the future of our Children!

Tuesday, August 17, 2010

Our 3 year olds...what are the PROFESSIONALS thinking??

I can tell it's a week before school starts! I received several phone calls just yesterday! ALL the calls were about the same exact thing...parents being TOLD (without it yet ever being discussed in any IEP meeting!!!) ...that their little one with Down syndrome HAS just one PLACEMENT OPTION and can ONLY attend a Disability only Developmental Preschool instead of the neighborhood elementary school that is nearest to the parents home!

What is wrong with people??! I just don't get those few professionals that speak up the most at these initial eligibility and PLACEMENT meetings! The oh so prejudgemental professionals read their wonderfully word-smithed initial evaluation reports and the parents are hearing these professional 'reports' for the very first time with lots of emotions and concern. Most of the time it's these new parents to the whole ESE 'ballgame'...that really don't have a clue what is happening! Hopefully they have taken another family member, friend or better yet an experienced advocate with them.

The professional PLACEMENT TEAMS seem to think that it is only their professional opinions that matter the most when making the PLACEMENT decisions about a 3 year old youngsters FUTURE EDUCATIONAL NEEDS!! What about what the PARENTS THINK IS BEST FOR THEIR OWN CHILD???  How can anyone really know what classroom set up is really going to be BEST, especially for a little guy just turning 3 years old? THERE IS NO DATA TO SUPPORT that a little 3 year old  absolutely needs a more restrictive classroom with fewer student to teacher ratio. WHAT IS THE NATIONAL TREND AND WHAT DOES THE NATIONAL RESEARCH SAY? WHAT DO DISABILITY SPECIFIC NATIONAL EXPERTS RECOMMEND AS BEST PRACTICES?

Our PROFESSIONAL PLACEMENT TEAMS in Broward want parents to believe that it is only the PROFESSIONALS that KNOW WHAT IS BEST for their Child!!  Please....give me a break!!  From what I am being told by several parents, now that have recently taken their little ones to be evaluated... that those professionals have only met, seen and worked with their Child for maybe 10 - 15 minutes total!!!  Of course if asked they will tell everyone they took a WHOLE HALF HOUR with the Child and now they KNOW BEST for that young child!  NOT!!!  (WOW a whole 10 to sometimes maybe
30  minutes...maybe.....to do an individualized evaluation for Speech, Occupational and Physical Therapy.)

The professionals not ever thinking to consider contacting and COLLABORATING with the private family therapist these little ones have been seeing for years! The private Speech, Occupational or Physical Therapist that has been working with the little one for over 3 years and actually KNOWS the Child really well!! Yes professional Part B therapist that do evaluations on youngsters with developmental delays are professionals, but when they start only listening to themselves and not ever taking into consideration what the parents concerns and what they as the Child parents feel will be BEST. It is the PARENTS THAT ARE THE REAL EXPERTS here at this point when it comes to where they would like to have their child educated and which school and why. I'm a firm believer that it's the parents that know THEIR CHILD THE BEST.

When there are IEP TEAMS of 8 plus professionals sitting around a conference table and pretty much all of the school system side of  INITIAL PLACEMENT TEAMS have a predetermined mind set on where and how a certain child with a particular or certain kind of disability should go to school...and not one of those people speak up and SUGGEST that maybe it would be ok and fine to have this little one  attend the neighborhood school that is just a few blocks away from their parents home that actually has the 3-5 year old "disability" program (PreK ESE Programs) designed just for little kiddo's that need a little extra help in their development.

I find it very sad that NOT ONE of those professionals thought the PreK ESE classroom MIGHT be a good placement for many of our 3 year old students with DOWN SYNDROME?? First of all when they don't even provide and discuss out in the open all the classroom and program options available...that seems then like it is a systematic decision that all students with a certain type of disability, like Down syndrome for example are only to be suggested to attend certain classrooms or certain types of placement decisions are already PREDETERMINED before ever meeting with the family! THIS IS DISCRIMINATION AT ITS FINEST and yes it is happening still today....but today it's not so much about race as it is about DISABILITIES today, and it is also about certain kinds of disabilities....Plain and simple it's about DISCRIMINATION AND IT NEEDS TO STOP!!

When IEP teams pre-determine placement before the actual meeting this is when their professional opinions and their PERSONAL FEELINGS to what they think is BEST for that child or how they usually do it...their feelings and their opinions don't mean a hill-o-beans! When there isn't and hasn't been professional collaboration going with the Child's private therapists and/or the
parents and there never was....they lose their creditability as the professionals they should be respected for! Personally they loose the repect they deserve as professionals...women usually...because they don't BELIEVE IN OUR CHILDREN WITH DOWN SYNDROME!! It is obvious by the well rehearsed same ol comments they provide to parent after parent after parent.

Why is it that placement after placement of our young Children with Down syndrome between the ages of 3 to 5 years old are more likely than not....to be  recommended placement in one of several Broward County School PROVIDER DEVELOPMENTAL PRESCHOOLS? These schools are not usually near to the Childs home and most times requires a long bus ride to attend them as well. Why are these little ones being PUSHED TO ONLY BE ABLE TO ATTEND ARC, ANN STORK, UCP or Broward Children's Center? Why are these Children not being offered the PreK ESE classrooms that are at our neighborhood schools? Someone please give me the data that supports the placement at a developmental preschool only as the best placement option always for so many Children with Down syndrome especially!

OUR LITTLE CUTIES WITH DOWN SYNDROME NEED SO MUCH CLASSROOM SUPPORT ABSOLUTELY AND LOTS OF POSITIVE PRAISE AND ENCOURAGEMENT, ESE SUPPORTS AND SERVICES! 

What I heard today during the initial evaluation and placement IEP "TEAM" MEETING for a particular cutie cute and oh so yummy sweet and delicious little boy....was that this team of Broward Public Schools Initial Placement Professionals INSISTED (almost dictated!) that he attend the very developmental preschool the parents had just pulled him out from just 2 months previous! THEY SAW THINGS THEY DID NOT LIKE AND DID NOT FEEL THIS PLACE WAS DOING WHAT THEY REALLY SHOULD BE DOING FOR THEIR SON, SO THEY PULLED HIM FROM THAT SCHOOL NEVER TO HAVE HIM GO THERE EVER AGAIN! So....tell me....why would parents want their little boy to go back to a place they knew to NOT BE THE BEST PLACEMENT OPTION for him?

I am sadden that we have so much PREJUDGEMENT AND PRE-DETERMINED PLACEMENT DECISIONS without parents having any say so in what they think might be best for their Child...so much of this is happening in our Broward school district! Our youngest and most vulnerable of students are being discriminated against and it needs to stop and quick! A STATE COMPLAINT MIGHT BE THE ONLY WAY TO HAVE OUR DISTRICT WAKE UP AND SMELL THE COFFEE WITH THIS ON GOING SITUATION THAT HAPPENS TO CHILD AFTER CHILD AFTER CHILD WITH NOT JUST DOWN SYNDROME BUT OTHER DEVELOPMENTAL DELAYS!

If you or someone you know has had a similar situation happen to you at your Child's Initial 3 year old placement TRANSITION IEP, please write me an email telling me your story. I want to help make a positive change and I need your help! 

Email me your story: AngelKids4me@gmail.com

Saturday, August 14, 2010

Inclusion for Children with Down syndrome

Inclusion for Children with Down Syndrome

Studies show children with Down Syndrome benefit from inclusion in regular  general education classrooms. However, one of the risks of inclusion is that children will be placed in a general education classroom without proper inclusion strategies to learn in that environment. Here are tips for successful inclusion. Good insight and resource!
 http://www.brighthub.com/

Friday, July 30, 2010

Should my Child take the FCAT?

FCAT FCAT FCAT and what does it mean for our kiddo's? Sunshine State Standards being taught is so much more important with an opportunity to actually learn them, hopefully with the support our student needs, is more important than our kiddo's being able to pass this darn FCAT! If a student fails the FCAT what interventions are in place for your Child if they didn't pass it?  Always ask yourself...what would a 100% general education student receive if they didn't do well on the FCAT? Your son or daughter should receive those same interventions and support as well! Don't settle for the Special Diploma option till your Child has had at least an opportunity to 'fail the FCAT' and receive intensive interventions to be able to pass the next FCAT and the next FCAT and the next FCAT!  Intensive interventions is part of what students receive if they score low on FCAT.

Little Secret:
YOUR SON OR DAUGHTER WILL NOT BE THE FIRST TO FAIL THE FCAT.....MANY NON-ESE STUDENTS FAIL THE FCAT!

See the several articles posted on Tampabay.com blog gradebook
blog Gradebook and you decide if this FCAT is a test we all can feel confident in anymore.

See also this article:
http://www.tampabay.com/blogs/gradebook/content/fcats-all-right-florida-department-education-suggests

Wednesday, July 21, 2010

The Essence of a New Day!

This is the beginning of a new day.
You have been given this day
to use as you will.
You can waste it or use it for good.
What you do today is important
because you are exchanging a day
of your life for it.
When tomorrow comes,
this day will be gone forever.
In its place is something,
that you have left behind...
Let it be something good...

Author Unknown

This little saying is
something I have used
as my inspiration
over the years,
now let me pass this on
to others to live by.

Have an Awesome Day!
Nancy Linley-Harris

Sunday, July 4, 2010

All you ever wanted to know about IEP's

IEP's
(Click to go directly to Kids Together, Inc. link)

Here is really great link about IEP's ~ what they are all about! What to expect at your Child's IEP meeting and what not to accept either! This website is so chock full of great stuff! Share this link with your friends!
BOOKMARK THIS WEBSITE!

This is a website called: Kids Together, Inc. nonprofit 501(c)3 Information & Resources for Children & Adults with Disabilities. http://www.kidstogether.org/

Panel approves removing 'retardation' from laws | Washington Examiner

Panel approves removing 'retardation' from laws Washington Examiner
(click above to go directly to the article)

FINALLY!!! NO MORE "R" WORD! It's a FEDERAL LAW!

All started by a MOM (just a mom) to a little girl with Down syndrome who is 9 years old now, her name is Rosa....this is being called "Rosa's Law". I love HaPpY endings!!

GREAT ARTICLE TO READ!
PASS IT ON!!

Friday, July 2, 2010

Unnecessary segregation of individuals

Forced Institutionalization of People With Disabilities Is Illegal - DiversityInc.com
"In the Olmstead case, the court recognized that the unnecessary segregation of individuals with disabilities stigmatizes those individuals as unworthy of participation in community life," stated Assistant Attorney General for the Civil Rights Division Thomas E. Perez. "By supporting Ms. Haddad in this case, we seek to ensure that individuals with disabilities can receive services in the most integrated setting appropriate, where they can participate in their communities, interact with individuals who do not have disabilities and make their own day-to-day choices."

Monday, June 28, 2010

Parent Training & IEP Workshop ~ Basic Areas of an IEP Document.

Please join me for a Parent Training & IEP Workshop  ~ To go over the basic areas of an IEP document.

Wed. evening  JUNE 30th, 2010

7PM - 9PM at Kids S.P.O.T. in the Oakwood Plaza. Hollywood, FL

*North of Sheridan St. across the street from the Oakwood Plaza Movies http://www.kidsspotrehab.com/

There is a $10 Training fee

RSVP 5PM 6/29/10 to: nancy.harris@dsadvocate.com

FREE BOOK to those that arrive ON TIME!

Bring your IEP's with you! Meet others and learn new advocacy skills!

Carpool & bring a friend!

*Please Pass This Info To Others That Would Be Interested -Thanks!

BRING YOUR IEP'S WITH YOU!!

Will go over the importance of all the different areas of the IEP Document and why each area is important.

FREE BOOK for those that arrive on time!
RSVP RSVP RSVP

Monday, June 14, 2010

Why can't my 14 year old read?

How can a 14 1/2 year old not be taught how to learn PRE-PRIMER DOLCH words? How can a Child that scores a 5 on her MATRIX in the communication domain section NOT be considered for Assistive Technology for Communication needs over the years? So many 'things' that could have been provided or taught but everyone has their reasons why this or that basic skill wasn't taught or why a device was never tried out to see if it could or might help a student communicate and be understood. I will always have a hard time understanding why some of our schools and why some of our professionals that are making lots of educational decisions for our Children continue to have a low expectation for learning basic life skills. Why is there still in our society people that keep thinking that our Children don't need to learn the same educational skills as everyone else? There is so much today in the way of technology it's absolutely a shame if schools aren't pushing and preparing our Children for their future, which is once they leave school life they have some basic reading, writing, and math skills.

The school today told the mom she was NOT ALLOW to have a copy of the MATRIX that was just updated after the IEP today. When she asked them to write a statement saying she wasn't allowed to have a copy of the MATRIX that she needed them to provide her something "in writing", she was then provided a copy of the MATRIX. During the actual IEP meeting, I asked what was the MATRIX number and was quickly told that wasn't to be discussed at IEP meetings.

Ok....so if the student has a major disability with talking and being understood, and the MATRIX is a 254, I don't understand why this student is only ALLOW to be provided with just a 1/2 hour of Language services and just a 1/2 hour of Speech services. As far as I could tell by listening to everyone speaking at this IEP this student should have been provided  n Augmentative and Alternative Communication (AAC) device ahttp://www.abilityhub.com/aac/aac-devices.htm (here is a webpage that shows some ideas for these types of communication devices!) At the meeting it was told to mom that she had been using a devices but when I asked mom if she had ever seen what they were talking about, she was not aware of any such device was being used. Again, it amazes me what some of these IEP team members come up with and to make the parent think something is being provided when in reality nothing was being done.

Getting the supports and services is paramount to our Children's success in school and post school outcomes to be successful in today's real world past high school. Being persistant and asking lots of questions and providing your PARENT INPUT throughout the entire IEP document is part of the IEP Process. This is YOUR CHILD they are all sitting around a table talking about YOUR SON & DAUGHTER...this is not someone that deserves a little less or a lot less...everyone is there to talk about what YOUR CHILD NEEDS...so let's STOP PLAYING ALL THESE IEP GAMES AND START EDUCATING OUR CHILDREN!

Parents...listen up! If you don't take some time to read up, attend trainings, disability specific conferences & conventions, meeting and getting to know other parents, being part of a disability specific support group....your CHILD will be missing out! Parents being told by other parents all sorts of stories and real life situations only helps each of us to understand how I can better help my Child be all he or she can truly be! We need to make sure the schools we choose for our Children has a great principal that is willing to work with you as a parent and the school has good teachers that are open to TEACHING CHILDREN ~ ALL CHILDREN and that means YOUR CHILD...no matter if you Child has a disability or no disability......NO CHILD LEFT BEHIND was signed into law for a reason...and that reason is YOUR CHILD!!

Read parents....research and go to trainings...make the time...take the time to educate yourself on how to be your Childs BEST ADVOCATE! Your Child is depending on you!

Here is a link to the Florida Sunshine State Standards....is your Child being taught these? If not....why not?

 http://floridastandards.org/page24.aspx

Saturday, June 12, 2010

Compass Learning ODYSSEY

Compass Learning ODYSSEY

http://compasslearningodyssey.broward.k12.fl.us/

This program is used in Broward County Schools - just put in your STUDENT ID# as the USERNAME & PASSCODE
(student # found on report card)

Great program with documentation to track student progress!
 
Enjoy!

Friday, June 11, 2010

AUDIO ~ Florence County School District Four v. Carter

AUDIO of: Florence County School District Four v. Carter
http://www.oyez.org/cases/1990-1999/1993/1993_91_1523/argument
CLICK ON THIS LINK and listen to the newest SUPREME COURT RULING!! Amazing stuff to listen to and you can also read it as well!

FAPE = FREE AND APPROPRIATE EDUCATION

This has to do with reinbursement to the parent if they enrolled their child in a private school when the public school did not provide FAPE.

This website is interesting...check it out!

Have a great day!

Monday, June 7, 2010

SPECIAL EDUCATION LAW AND ADVOCACY WORKSHOPS

FREE ~ YES THAT'S RIGHT FREE!!!


SPECIAL EDUCATION LAW AND ADVOCACY WORKSHOPS

Presented by:

The Florida Developmental Disabilities Council, Inc.

and

The Advocacy Center for Persons with Disabilities, Inc.

Learn how to be a strong advocate for children with disabilities in the public school system at four free workshops scheduled for this August.

A lawyer and an advocate from the Advocacy Center will team up to teach you how to be an equal participant in the IEP process. Training will focus on sections of the Individuals with Disabilities Education Act (IDEA) and Section 504 and will include:

Eligibility and Evaluation

Universal Education (Inclusion)

IEP and Advocacy Tips

School Discipline

Transition from High School to Post-school activities (work, school)

Problem Solving (With a Question and Answer Session)

To register go to http://www.fddc.org/registration
or call 1-800-580-7801

All workshops are from 9 am – 4 pm and are FREE!

August 3, 2010 – Fort Lauderdale, Hyatt Pier 66

2301 SE 17 Street Causeway

August 5, 2010 – Tampa, Tampa Marriott Airport

5507 W Spruce Street

August 7, 2010 – Jacksonville, Hyatt Regency Riverfront

225 East Coast Line Drive

August 9, 2010 – Fort Walton Beach, Ramada Plaza Beach Resort,

1500 Miracle Strip Parkway SE

Let us know when you register if you need a sign language interpreter or Spanish translator.

Seats at the workshops are limited to 200. All registrations received after the first 200 will be put on a waiting list and will be contacted if space becomes available.

The list below shows how many are currently registered for each workshop. We will update it frequently so that you can see when 200 are registered

August 3, 2010 – Ft. Lauderdale, Hyatt Pier 66, 2301 SE 17 Street Causeway - 47

August 5, 2010 – Tampa, Tampa Marriott Airport, 5507 W Spruce Street - 40

August 7, 2010 – Jacksonville, Hyatt Regency Riverfront, 225 E. Coast Line Dr. - 71

August 9, 2010 – Ft. Walton Beach, Ramada Plaza Beach Resort, 1500 Miracle Strip Pkwy. SE - 18

Sunday, June 6, 2010

IDEA says about Assistive Technology & English Language Learners

The laws and rules relating to the use of assistive technology for meeting the educational needs of students with disabilities, parental consent REVOKE (new!), and services for English language learners (ELLs) with disabilities.

Assistive technology, Section 300.24(a)(2)(v) of Title 34 of the Code of Federal Regulations (the “yellow book”), the IEP Team must “consider whether the child needs assistive technology devices and services.” Additional related sections of Title 34 CFR are 300.105(a), 300.105(b), 300.113, 300.5, and 300.6. Additionally, Florida State Board of Education Rule 6A-6.03028(3)(g)(10), Florida Administrative Code (F.A.C.) (the “red book”), states that in IEP development, review, and revision the IEP Team shall consider “whether the student requires assistive technology devices and services. On a case-by-case basis, the use of school-purchased assistive technology devices in a student’s home or in other settings is required if the IEP Team determines that the student needs access to those devices in order to receive a free appropriate public education…”

For ELLs with disabilities, 6A-6.03028(3)(g)(10), F.A.C., states that the IEP Team shall consider “in the case of a student with limited English proficiency, the language needs of the student as those needs relate to the student’s IEP.”

In regards to parental consent, section 300.300 of Title 34 CFR describes the procedures school districts must follow in obtaining parental consent for evaluations. Note that in some cases parental consent may not be required (e.g. if the district has made “reasonable efforts” to obtain consent or if the parent has “failed to respond,” or for certain tests or evaluations that are administered to all students). Note also that a district may use dispute resolution procedures to obtain parental consent in some cases. See also state regulation Rule 6A-6.0331.

Below are direct links to the federal and state regulations:

Title 34 CFR (“yellow book”)  ~ IDEA
http://idea.ed.gov/download/finalregulations.pdf

Florida Rules (“red book”)
http://www.fldoe.org/ese/pdf/1b-stats.pdf

Saturday, June 5, 2010

BENSON'S IEP UPDATE!!

Well...finally we tried to create a workable IEP document for this little guy. The first meeting we were "allowed to" meet for 2 hours, the 2nd time we were "allowed to" meet for 2 hours...and now the other day we were "allowed to" meet for ONE HOUR! We are so grateful for being "allowed to" meet on 3 different occassions to create and write up a quality IEP for BENSON that so was NOT PROVIDED what mom was told he would be provided at the school mom ended up using the McKay funds for him to attend. This school is in a section of Broward County that is very far for the mom to drive to, she refused to have her son attend a KNOWN CLUSTER SCHOOL that was in her neighborhood in the Pompano area and was not given much choice on WHERE HER SON COULD ATTEND SCHOOL because of how his wonderful IEP "team" wrote up his IEP document at the DEVELOPMENTAL PRESCHOOL. Mom input, concerns and wishes for her son was not included in her sons IEP from the Developmental Preschool. That IEP was done just a few days before school was let out and with no one 'working over the summer' to help create a well written IEP for her Kindergarten school year. This is why BENSON was NOT in school the first 2 months of this school year....the district IEP people would NOT BUDGE on their stand that BENSON was to only be provided 100% EXCLUSION & SEGRAGATION from his non-disabled peers for his Kindergarten school year! How does this sort of thing happen to our children? Why did it happen to BENSON? What was the real reason why BENSON was to be 100% in an ESE CLASSROOM and not provided with supports and services that would have helped him be successful in a gen ed kindergarten classsroom?

On Oct. 7th, 2009 Mom requested to have her son provided a FBA-Functional Behavioral Assessment and AT-Assistive Technology Assessment....this was in written form and provided to this 'nice school'......the person in charge...claims she never knew or received that written request. Oops....oh well....again...they didn't know...and my goodness wasn't it obvious that BENSON needed  that SUPPORT & SERVICE? Wasn't there any concern about his behavior & communication?? BENSON WAS NOT EVEN ASSESSED for AT or for a FBA this entire school year! ....was this because mom didn't put in for that support or service? NO!! This was because this school didn't care to do what was right! It was a written request from mom and provided and should have been included in his school files. It was talked about on several occassions and still nothing was done to move forward to have those assessments completed. Why?

When BENSON was finally enrolled in what was to be a good school in a good neighborhood far from mom's address....mom was told by the person in charge of running IEP meetings at this nice school that, "oh yes we are an INCLUSION SCHOOL!"......he would be included with a gen ed kindergarten here and there and for this and for that.....MOM DID NOT BELIEVE THIS and MOM'S GUT FEELINGS WERE RIGHT! This 'good school' did NOT provide any quality inclusion for BENSON. The Gen Ed K teacher did NOT even make EYE CONTACT WITH BENSON at a couple of observations that were held during the year. His HALF HOUR OF INCLUSION TIME IN THE GEN ED KINDERGARTEN was BENSON VISITING! He was NOT included as you and I would be included...he was WATCHED for any little movement he "might make".....those students in that "inclusion kindergarten' classroom were not BENSON'S friends...a student even said to the mom one time, "Is BENSON ALLOWED TO BE IN HERE?" ....wow.....why would a young kindergarten student even say such a thing? Was BENSON "allowed to be there".......this innocent comment from one of his 'kindergarten inclusion classmates' paints the real picture of the whole MINDSET of this particular kindergarten teacher, the classroom, school administrators & the entire school population!

BENSON WAS NOT INCLUDED like mom was told by staff on the day she enrolled him back on October 8th, 2009. That was BENSON'S first day of school......because the IEP "team" forced BENSON and his mother to have on his Individual Educational Plan without PARENT INPUT on what her concerns and wishes were for her son. Mom knows her son better than anyone that will ever attend his IEP's.

BENSON was LEFT BEHIND this school year. Mom is trying to make sure her son is not left behind again for next year! She wants him to be 'held back' and to have an opportunity to attend KINDERGARTEN like he should have this year! He was only allowed to visit kindergarten for a HALF HOUR....that is NOT being INCLUDED! That is visiting a kindergarten classroom! *Did he even have his own desk in there?

I have permission from BENSON'S mom to write all I want about her son on this BLOG so it can help others. I plan on making sure BENSON'S STORY is told to many...so what has happened to BENSON does not happen to others.

I will be updating and adding to the BENSON STORY...so those that have a personal interest will be updated on how things are working out for him and his mom in trying to create a well written IEP document. I want to be able to provide something for everyone to read and get updates so everyone has something to sleep on & ponder about with the BENSON situation, as I am so very sure there are many many Children and families out there that can relate to BENSON'S IEP process and situation.

Parents:
Tell me if you can relate to the BENSON STORY

Teachers:
Tell me if you can relate to the BENSON STORY

District:
Tell me if you care if BENSON was INCLUDED in Kindergarten or not.

State DOE:
Tell me if you are aware of more situations where certain disabilities are being forced into CLUSTER CLASSROOMS against parents wishes & desires.

BENSON'S IEP was left in a DRAFT FORMAT till the new 2010-2011 school year begins in August!! This was  after just 5 hours over  3 different times to meet and work on his IEP. (2 for 2 hours and 1 for 1 hour over a 2 month time period.) CAN DRAFT IEP's EVEN BE OPEN OVER THE SUMMER BREAK?? How does that really work out?

BENSON deserves to attend KINDERGARTEN like any other small boy!

POST UPDATE: Anonoymous comments are not allowed to this blog. If you want to leave a comment you do have to reveal your identity...thats all.

Saturday, May 15, 2010

School lunch outside on the picnic table


















Mom surprised me the other day at school and had lunch with me outside on the picnic tables at school. It was such a pretty day with a nice breeze! With all the budget cuts in our school district my mom thought it would be a good idea for me to wear my ART CLUB T-shirt to remind everyone that ART is important to me and my friends! Please keep Art, Music and PE in my school because my friends and I love music, painting, drawing, being creative and I absolutely love going to PE because Ms. Carter is one of my favorite teachers at my school. With all the budget cuts happening at my school and in my school district I am going to miss out on learning THE FUN STUFF!


Friday, May 14, 2010

INCLUSION or EXCLUSION

The word inclusion from the dictionary means: to belong or part of. At school I think most of us would want to 'belong and be part of'.....but today, yup still today there is thinking out there that some people shouldn't belong or be part of, it's called exclusion, discrimination and segregation.

I have been part of many IEP teams in several Florida counties, my home is Broward County and I have to say I am witnessing what seems like a real push to segragate our children with Down syndrome from the general education classrooms and making parents feel like their Child has to go only  into special education classrooms or what is commonly known as the cluster classrooms instead of allowing them to be educated side-by-side their neighborhood friends and be taught in the general education classrooms with the support and services they would need to be successful. What I am seeing on a more regular basis is an increase in discrimination towards certain individuals, in particular our little 3 years olds with Down syndrome that are transitioning into what is called the Part B services (Dept of Education) with providing all the different educational options for our children with Down syndrome specifically. Busing children with disabilities to miles away from their neighborhood schools is still common practice today!

Today those with Down syndrome are being EXCLUDED from attending their neighborhood schools and in not being allowed to be educated in regular classrooms more and more! They are being pushed into or pulled out to leave and go to special education classrooms that are filled only with students that have a disability! Full Inclusion is not the first option on the minds of the educational professionals that are evaluating our Children and the certainly not the principals running our schools! There are some principals and schools that are doing a fantastic job of including students with disabilities, but the majority of our society still does not allow 'those kids' to go to all classes with everyone else!

I am sadden to know that there is still such discrimination happening in our county and in our world. There are many schools that don't even let those with disabilities use the front door of our Public schools....they use the back or a side entrance on another side of the school building!! Many time where the garbage dumpsters are located and the big garbage trucks come to pick up the school garbage! Yes the same door that was created for taking out the garbage!

WHY IS THIS DISCRIMINATION & SEGREGATION STILL HAPPENING TODAY?? I SEE IT WITH MY OWN EYES RIGHT HERE IN BROWARD COUNTY FLORIDA TODAY IN 2010!

WHY ARE OUR SCHOOLS HIDING PEOPLE WITH DISABILITIES AND MAKING THEM HAVE TO USE THE BACK OR SIDE DOORS?

WHY ARE PARENTS ALLOWING THEIR CHILDREN TO BE TREATED WITH SUCH DISRESPECT BY MAKING THEM HAVE TO USE A DIFFERENT DOOR THAN THE REST OF THE STUDENTS! STAND UP PARENTS AND DON'T ALLOW SUCH DISCRIMINATION AGAINST YOUR PRECIOUS CHILD! THIS IS ONE REASON WHY IT CONTINUES!

ROSA PARKS MADE A STAND ON WHAT SHE BELIEVED TO BE RIGHT! SHE PAVED THE WAY FOR MANY! DO THIS FOR YOUR OWN CHILD!

Thursday, May 13, 2010

Professionals and Experts

There sure can be a good many PROFESSIONALS sitting around the tables of IEP meetings, but parents are the EXPERTS not the professionals when discussing issues and concerns about their Child. Where do the professional therapist get their knowledge? They attend several years of college, they read alot and study for a good many exams to pass a State exam. By choosing to become a
therapist to work with certain types of people, like Speech, Physical or Occupational Therapist, they devote their lives to provide a service to help others...a noble profession to choose for sure! Therapist could help babies, or young school age children or adults that have maybe had a stroke and need help relearning basic life skills to be independent again. No matter what the age of the 'clientele' these professional therapist choose to work with exclusively, they want to help that person gain delayed or lost skills and see them make progress no matter what.

Today I was part of an IEP team meeting discussing how to help this little girl learn how to write basic shapes, letters, numbers and to even be able to draw simple stick people etc....she is 6 years old and is unable to write independently on her own unless she is tracing prewritten words and letters or by an adult assisting her with hand over hand to trace. As a professional therapist do you think at 6 years old this little girl should be able to at least write her first name? I know there are many factors and of course it depends on the specific disability and absolutely the expectations that we as professionals and experts place on individuals, especially certain groups of individuals with particular kinds of disabilities.

When I am advocating to get the support this little girl needed, I was provided the little girls writing journal that all little Kindergartners do all year long...to learn to write letters, draw pictures and to create little sentences or short stories. Do you know that this little girl has only done her best to create what to any mom and dad would say are her masterpieces....even though they may look like 'baby drawings' to most that see it. I was able to flip thru a year years worth of hard work this little girl created in her journal. It is and was very obvious to everyone that saw her journal at that IEP table, that she needs extensive help to learn how to write, draw and create words. But do you know that the PROFESSIONAL only recommended the absolute minimal amount of time to help her gain or learn writing skills! It was her professional opinion that she didn't need a minute more. I find this type of professional advice to not be what they know in their heart to be why they originally spent all their time in college to learn such a noble career. How can therapist make their professional opinions
pertaining to how much weekly help a client will need to gain and
learn new skills if they don't spend enough time with them to really help them? I am appauled at how unprofessional some of our professionals have become when they make professional recommendations for the amount of therapy service times for our children that are in severe need of help to gain and learn skills.

I think because they work for the school district they are only allowed to make certain recommendations and no more...less yes...but no more than a certain DISTRICT LEVEL ADMINISTRATOR INSTRUCTED amount per student in our Broward County School system. Is this right? Absolutely not! Will it change? Can it change? How can we help make a change to the way Broward Schools provides certain therapies for students? By letting others know what
has happened to you when trying to get the help your Child needs to be successful with writing, talking, walking, fine and gross motor skills. By making sure you have resonable goals written into your IEP document to substanciate the need for the support.

Write or call your State Department of Education and tell them your story! Make sure you have data to show what your Child is or isn't doing if you are trying to get a particular support or service. Here is the main phone number to our Floida Department of Education, ESE department - (850) 245-0477 and here is the main FDOE phone number also - (850) 245-0505 FEEL FREE TO CALL YOUR STATE DEPARTMENT OF EDUCATION IF YOU FEEL YOUR CHILD'S RIGHTS ARE BEING DENIED! This is just one way to have your voice heard and to help make more positive changes in our school districts for our Children! Let your voice be heard!

Being your Child's Advocate is a life long journey that we as parents
and families are the EXPERTS, not the professionals when discussing issues and concerns about your Child. Parents.....YOU ARE THE EXPERTS on what your Child needs and it is up to you to help the PROFESSIONALS have HIGHER STANDARDS and to expect LOTS of progress in a years worth, not just a little isolated goal here and there but to have BIG GOALS AND TO HAVE BIG DREAMS FOR WHAT YOUR CHIlD CAN AND WILL BE ABLE TO ACCOMPLISH! An annual IEP is written to be for a years time...make it worth it!