Showing posts with label Inclusion. Show all posts
Showing posts with label Inclusion. Show all posts

Monday, May 26, 2014

Inspire Inclusion By Dr. Julie Causton ~ VIDEO #2: Legal Aspects of Inclusive Education

Inspire Inclusion

Video #2: Legal Aspects of Inclusive Education Dr. Julie Causton 

http://www.inspireinclusion.com/video-2-legal-aspects-of-inclusive-education/ HERE

IDEA Supplementary Aides & Services Check List to take to IEP meetings! HERE

http://www.inspireinclusion.com/wordpress/wp-content/uploads/2013/06/checklist_full.pdf HERE

I am thankful for and inspired to share with you one of the Top Experts in supporting Inclusion for ALL students into neighborhood schools & classrooms they would attend if they didn't have a disability! ~ Dr. Julie Causton

Her Video's and website are JAMMED PACKED with the tools needed to Advocate for our Children to be provided an Inclusive Education. Sign up to receive more useful resources Dr. Julie Causton provides!

This is the Meat & Potatoes!!!!
Have a Great Day!
Pass it on!! 

Nancy and Mariah
321 Fun ~ Mariah's Life!

Wednesday, May 21, 2014

Special Education is Not a Place: Individuals with Disabilities Education Act By Lily Clausen, Isabel Frye and Chloe Marsh Junior Division

Special Education is Not a Place
U.S. Department of Education sent this bulletin at 05/21/2014 11:21 AM EDT

Special Education is Not a Place: 
Individuals with Disabilities Education Act
By Lily Clausen, Isabel Frye and Chloe Marsh
Junior Division

This website was created by 3, seventh graders. 
Pass this GREAT RESOURCE on to others! I think they did an absolutely fantastic job on their project!

http://65454531.nhd.weebly.com/uploads/2/5/7/8/25788665/process_paper.pdf

http://65454531.nhd.weebly.com/

Friday, July 19, 2013

Florida ESE in 2013...Remember ~ Racial Segregation of Schools particularly in the South between 1955-1968



Florida ESE in 2013...Remember ~ Racial Segregation of Schools particularly in the South between 1955-1968. 

This Archived News Clip is worthy of watching to see the similarities with our exceptional student education (ESE) population of students today.

*The CLINTON HIGH SCHOOL Principal ~ We need more Principals like him! 

*So many awesome people that spoke out back then! True Civil Rights ADVOCATES!

Monday, June 3, 2013

ALL SCHOOLS NEED PEER MENTORS & PEER BUDDIES ~ FIN CAN HELP WITH THIS

Davidson eighth-graders assist special needs classmates

By BRIAN HUGHES / News Bulletin 
Published: Thursday, May 30, 2013 at 18:54 PM.

CRESTVIEW — It takes a special kind of student to be a Davidson Middle School buddy. In fact, school officials said, it takes the "crême-de-la-crême," or cream of the crop.

The program, in its 10th year, links specially selected eighth-graders —  the buddies — with students in the school's exceptional student education program.

"They are peer mentors," program director and E.S.E. teacher Carol Cassity said.

READ THE ENTIRE ARTICLE by clicking this link -->
http://www.crestviewbulletin.com/education/davidson-eighth-graders-assist-special-needs-classmates-1.151264

My 2 cents worth=I've been encouraging Broward County Public Schools to get this started for years now...FIN-Florida Inclusion Network has this program and could help Districts with this getting up and going in all our Districts...IF they wanted to. This is the program I wanted to VOLUNTEER to help get it started at my daughter's Middle school...didn't happen...but is still needed everywhere! 

Let's get this going in many more schools and not just Middle school!

Monday, April 8, 2013

"Be The One" ~ It Starts with A Voice ~ Starring Lauren Potter


"Be The One" {Music Video} from Life Stage Films on Vimeo.
from It Starts with A Voice - www.itstartswithavoice.com

"Be the One" Written, Recorded, & Produced by Amy & Ben Wright
Starring Lauren Potter
Directed by Matt Davis of Life Stage Films - www.lifestagefilms.com
Purchase the song on iTunes to benefit Best Buddies International

"Like" us on Facebook at:
https://www.facebook.com/ItStartsWithAVoice?ref=hl

Step off of the sidelines and be the one who makes a difference in someone's life. www.BestBuddies.org

Thursday, March 21, 2013

Mariah Harris testifies before the Florida Senate Educational Committee

Proposed education bill reported favorably out of Fla. Senate committee


See Mariah speaking before the Senate Education Committee 3.18.13 
~ Go to 21:07 - 22:57 on the video to see Mariah and the other members of ESE Reform Taskforce of S. Florida. ~


Mariah and I testified before the Florida Senate Education Committee in support of SB 1108. We traveled with the newly formed 45 day old, ESE Reform Taskforce of S. Florida group. A group of parents that drove from South Florida to testify and tell our IEP and Special Education stories to our State Senators on behalf of Senate Bill 1108. 

Mariah Harris, a 6th grader attending Parkway Middle School and included in the S.T.E.M. Magnet Program testified and spoke an awesome public speech telling the Florida State Senators why she wants to be "taught to learn and earn a real High School Diploma, because she wants to go to College to be a Vet Tech!" 

The Bill passed unanimously with all in favor to pass in a 8-0 vote! This was exciting to be part of and to see Mariah read her speech before live TV and Newspaper Reporters taking notes! Mariah did an awesome job especially for it being her first major public speaking engagement. She was amazing to see her reading her speech! She was a natural public speaker! She enjoyed it and was professional about it!

Two days later House Bill, HB 465 was voted on unanimously 13-0 in favor as well! 

THIS is a huge win for PARENTS of children on IEP's!!

This was a life dream for me to see my daughter well on her way to becoming a National Speaker! She is already thinking about her next speech! Her mother couldn't be prouder!

*See Mariah on The Capitol Update from March 18th, 2013. Go to 21:08 on the Video to hear Sen. Andy Gardiner and Sen. John Thrasher present on S.B. 1108. A small snippet of Mariah's speech will follow.
http://www.wuft.org/news/2013/03/19/proposed-education-bill-reported-favorably-out-of-fla-senate-committee/#.UUpurn9wxSg.gmail 

Saturday, December 1, 2012

Hillsborough Parents Want Better Training for School Employees Working With Disabled


Hillsborough Parents Want Better Training for School Employees Working With Disabled

“We are definitely looking for mandated training, especially for the aides,” she says. “When you pull somebody in out of the cafeteria to become your child’s aide it’s not safe, and it’s not educationally relevant.”

The Para's / Aides absolutely need DISABILITY SPECIFIC Training and the PARENTS are the EXPERTS on their child, the student they are working with. 

Click below for complete news article.
https://stateimpact.npr.org/florida/2012/11/29/hillsborough-parents-want-better-training-for-school-employees-working-with-disabled/

“I have yet to see a segregated classroom that is better than the general education setting.”


“I have spent hundreds of hours in segregated classrooms,” she said. “I have yet to see a segregated classroom that is better than the general education setting.”

I couldn't agree with this more! Click the link below for the full article. 

http://stateimpact.npr.org/florida/2011/12/20/why-everyone-learns-more-when-students-with-disabilities-are-included/

Friday, October 19, 2012

Wednesday, May 30, 2012

FORCED OUT OF THE IEP PROCESS TODAY!!!

What is with BROWARD ESE DEPARTMENT and pushing their agenda to do what is now being called, "BEST PRACTICES" ~ not a real policy in writing anywhere.....but a 'suggested best practice' ~ if your child's ANNUAL IEP is November 1st or before Nov. 1st, it is suggested...oops I mean it is being FORCED on you that you WILL HAVE TO HAVE AN ANNUAL IEP in May before your child matriculates into the next school level, as my daughter Mariah is going on into the 6th grade to Middle School! 


.......but what about the fact in writing that I have been REQUESTING AN INTERiM IEP since like March maybe even late Feb~ yes in many written emails to several of my need and my request to have an interim....all fell on deaf ears or wasn't considered because there was never a RESPONSE to my requesting an interim. With no communication pertaining to when a meeting time would be scheduled ~ NOW TODAY I am all set to have my much awaited interim iep meeting......I have waited long enough! With 5 1/2 school days left of this school year ~ I was all set to have a good meeting with her IEP Team! The time for me to have my meeting today was very accommodating to have it start at 9AM and run till 3PM if we needed. Unheard of by today's standard's, since several of my friends now are only being allowed 30 minutes to an hour to hold their IEP meetings! It was going to be a good day...all was good this morning.


The classroom/meeting room was PERFECT ~ absolutely perfectly set up to be able to work together as a collaborative TEAM! The student desks and chairs were set up in a perfect SEMI-CIRCLE with the projection ready for viewing the electronic Ez-IEP on the white board on the wall. Mariah's IEP TEAM was all sitting around waiting for me to arrive, all nice and relaxed and waiting as I walked in. Just how LONG HAD THEY ALL BEEN SITTING THERE?? Were they sitting there PRE-Discussing anything about my meeting BEFORE I arrived? I wonder as this also seems to be common practice here in Broward, where parents are always the last ones to enter the meeting. I walked in with my 2 advocates, we picked chairs to sit in and I quickly set up my laptop and recorder, pulling out all my paperwork & notes ready to start the meeting. Wait a minute.....I had advocates with me! Why?  ~ I AM THE ADVOCATE! 
Why did I bring 2 advocates with me today? 
...because we all need to take an advocate now and again. Today I didn't want any funny-funny stuff being pulled on me alone, especially with my daughter moving on into middle school. I wanted to make sure Mariah's IEP document stayed SOLID as I felt it was. Mariah's IEP is a darn good one, a well written IEP today, which expires the end of September. This is another reason why I like to set up an interim  IEP at the end of every school year to prepare and plan for the first few months of the upcoming new school year, with all new teachers. To me that is the 'best practice' that I have always done over the years.


This morning what happened to me should never have happened...to me or to anyone! ....and it's a 'best practice' thing? Best Practice for WHO? Certainly not for me and or for my daughter's benefit! 


I am sickened that a Program Specialist or a "compliance specialist" as they are now sometimes called here in Broward County and even the ESE Specialist, how these people are so quick to suggest and basically force you to FILE for a Due Process Hearing ~ if you don't like what is being done at that moment in our IEP meetings, this is the push! This seems to be our districts quick-fix and the answer to doing things THEIR WAY!! Well heck, Broward public schools has some pretty pricey lawyers don't ya think?? .....and this is all done in the BEST INTEREST of my daughter ~ really??! 


FORCING ME to agree that this particular IEP meeting was now going to be Mariah's ANNUAL IEP is how the ESE employee side of Mariah's IEP was going to PUSH ME into moving ahead with this meeting. This was mostly coming from a program specialist that I don't think she even knows what color my daughters eyes are or how long her hair is now! ~ How dare all the ESE EMPLOYEES in attendance of this meeting force and make my daughters teacher-of-the-year and therapists be forced to have to SIT & WATCH and be now be part of AIR GETTING SO THICK like a DARK STORM CLOUD coming over all of us! All done with such a strong sense of, don't know what words to use here to describe the feeling in the air........certainly nothing but W R O N G going on!!! It was all very wrong indeed~!! This was not what I was hoping to accomplish today at my daughter's meeting!


I came prepared to update & make sure things would be in place to run smoothly for her starting in the Fall at her new Middle school. She was accepted in a MAGNET PROGRAM!! The S.T.E.M. Magnet Program!!!! I came prepared to be part of meeting I had been requesting since March - I documented all over the signed PPF that I was NOT agreeing to this meeting being an ANNUAL as had been 'suggested' - guess our district makes up their own "best practices" aka Broward made-up rules (no written policies have ever been provided when I asked) - my school ESE Specialist - Mariah's wonderful Wilson Reading ESE Teacher - and a District ESE "WIND-UP ROBOT" speaking to me like she had a scratch in the CD or like a broken record repeating the same sentences in her monotone voice. She was SENT and sitting there only to strong-arm and BULLY me at my meeting! Sitting there only to force me to agree and turn it into an ANNUAL IEP. Everyone knew in all of my previous emails that I had always been requesting and wanting to hold an interim meeting, since March! What was the BIG DEAL ~ Why now was there this PUSH TO FORCE this meeting to be an ANNUAL IEP? I felt Mariah's IEP was still good to go. She was still working on some pretty solid academic goals that still I felt needed to be carried over into Middle school. 


There was no one in attendance from her Middle school, to provide input or information pertaining to the magnet program curriculum. The S.T.E.M. Director from the Middle school was going to be stepping into the meeting a little later. 


How can one person that doesn't even KNOW MY DAUGHTER put such spin & create such a negative force on how a meeting WILL NOW MOVE FORWARD and GO? I announced that I wanted to STOP the meeting! I stood up and started gathering all my things ~ She stated, "THEY WILL STILL GO AHEAD WITHOUT ME!" She sounded like a broken record with no emotions to what she was creating all by herself like a ROBOT with a skip in the recording! Really??!! How is this in the BEST INTEREST for my daughter's education and for Mariah going into a new Middle School? WHO or where was this person getting her ORDERS FROM?


This is not how I saw my daughter's interim IEP meeting going this morning when I woke up after so little sleep preparing for a productive meeting for Mariah's educational supports for next year in Middle school.


This was to be Mariah's LAST IEP Team meeting at Stephen Foster Elementary ~ going to this same school since she was 4 years old! She will be 14 years old in September. Thanks for my "going away meeting" I have anticipated for way too long! ~ I have a gut-feeling that this has to do with the new principal in some way. Considering he enjoyed censoring each and everyone of my emails this entire school year! Yes ~ I said ALL of my emails were censored by my school principal this year. Can't wait to see what MESS this will bring! 


Thanks for the end-of-the-year PaRtY!! Stephen Foster Elementary School has been good to my daughter! Most of Mariah's teachers were awesome and workable and wonderful to work & talk with and really cared that Mariah was successfully educated and gained higher level skills! There have been a few teachers that certainly have alot to be desired in the stand-off attitude towards me over the years. Some teachers just don't have it in them to work collaboratively with involved, concerned parents like me. But for the most part Mariah has always had WONDERFUL TEACHERS THAT CARED ABOUT MARIAH LEARNING & worked collaboratively with me.


Stephen Foster Elementary has served my daughter well ~ never dreamed or thought her final IEP meeting would be like this one. A total SLAP IN THE FACE to me as her parent and her advocate for her education! I was FORCED OUT OF MY DAUGHTER'S Interim IEP today! They carried on and 'said' they would go ahead and turn it into an ANNUAL IEP without me, if I left! I'm so sorry collaboration didn't take place today and my school didn't want to provide me an opportunity to take a look at the supports and services my girl will be needing on her first day of 6th grade in the Fall! Oh well at least this IEP document wasn't out of compliance because of the 'date' of the annual being held past the annual date.........this time! Her next required annual review will occur on or before: September 22nd, 2012. Mariah still needed time to work on and master some pretty solid IEP goals I had in her document.


I am not a happy camper today! Should I be? Would you be? 


Mariah ~ things will be OK ~ you watch things will be OK once your mom fills out a few papers ~ it's like making a phone call.........to the police! 


I can not sit back and pretend all is well with how I was treated and forced 'to file' as it was suggested I do from the program specialist this morning. I will not be filing a DUE PROCESS.


Those that are unfamiliar with the IEP process or what just happened to me today at my IEP meeting or what the heck I am upset and unhappy about.......it's about my CIVIL RIGHTS! It's about Mariah and what will be best for her as she leaves her elementary school and goes on into Middle School into the S.T.E.M. Magnet Program in the Fall.


*This is not a reflection on how grateful I am to Mariah's many teachers over the years and therapists that have helped Mariah get to where she is academically today. I'm just sorry we all are now part of what seems like the systematic nonsense and ESE Parent bullying that I have seen happen at many many IEP meetings here in Broward!! What WAS that? ~ What was it that happened so quickly this morning???......grrrrhhh!!! 


NOT HAPPY WITH THE "SUGGESTED BEST PRACTICE" IDEA or "the recourse I can take if I'm not agreeing" to 'THE IEP TEAM DECISION!! 


I WANT MY DAUGHTER'S INTERIM IEP TO BE A "START OVER" or a "CANCEL ERASE".....can we do that? 


NOPE~!! 


"THEY HELD THE IEP WITHOUT ME!!!"
....and FORCED me to agree to make it her ANNUAL IEP, which I didn't think was needed at all! She has a well written IEP with solid goals that still need to be worked on. 


........and I'm very much involved with my daughter's education and I'm a Special Ed Advocate for others & for my daughter especially! Have to be!


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                   THANKS!










Sunday, May 27, 2012

Parent Involvement is VITAL!

I am so glad this school year is 'winding down' ~ I have served my school district well this year ~ I have advocated strongly for what I believe in, sitting on way too many Parent Advisories! (6 total) I will do it all again next school year ~ focusing more on 1 very important "independent" young girl with Down syndrome entering Middle school! My daughter is moving on into the 6th grade. Middle school is a big transition for any student, especially for a student with a disability. My daughter is one lucky girl to have me as her advocate mom!!! 


Parent involvement is vital in raising educated children with disabilities more so and ESPECIALLY if your child has Down syndrome! Students with Down syndrome still today in 2012 ~ are being left out and discriminated against so blatantly by not allowing students with Down syndrome to be included and sitting in 'regular' classrooms with non-disabled students. Many schools still are not doing such a hot job of educating our children with disabilities and especially our students with Down syndrome!! Yes there are many schools & teachers doing an awesome job, but for the most part, it takes a persistent advocate parent to make sure our children are truly being educated today, that includes students without any disability as well too! 


When I visit schools and I continue to see students with a specific disability type still being separated and segregated, it gets to the core of my being! [aka clustering] When I see fellow Down syndrome young people continue to only be with other students that have the same extra chromosome or grouped in classrooms that are only for students with disabilities hits me right to my core! I have seen with my own eyes that "those students" are moved around the campus so there is absolutely no opportunity or minimal opportunity for them to be included in the society of school campus life, as the rest of the student population are able to do so naturally. 


Many students with disabilities are still being hidden away from society! If it is allowed to happen in our schools, it will continue outside of school. Schools are little societies, how are we accept and include those with disabilities in our schools today teach and reflect how we expect our young people and future generations to treat those that may look or act a little differently. Being accepted, included and having high expectations to be successful, contributing members of society starts in our schools with fellow classmates, teachers and district administrators, and yes that means our principals too!. It's that simple! 


Students with Down syndrome and any other number of disabilities absolutely need extra academic help and support, no doubt about it! This is why there is extra FUNDING attached to those special needs students, updated at every annual IEP meeting through the students MATRIX number, the higher the MATRIX number the higher the extra funding provided to help educate and take care of them while attending school. Do you know what your child's MATRIX number is and just how much money that actually means for your child's school? Ask the principal and find out now your child's MATRIX money is being spent each school year. Learn all you can about what is a Matrix and how much of your child's MATRIX funds are helping your child. ASK & KNOW all you can.


Teachers today are trained to TEACH ~ they became teachers because they love to teach. That includes teaching a diverse group of students and that includes students with all sorts of learning styles, all sorts of nationalities and all colors of the rainbow, let's not forget to include students with disabilities in that diverse population of students in today's classrooms with general education teachers that went into the profession to teach. 


Many students today have ADHD, Autism, CP, Down syndrome and any number of other possible disabilities ~ a diverse group of learners. These students need an open minded teacher that is flexible and willing to think outside-of-the-box and include them in more general education classrooms. Absolutely they may need extra help academically, socially, emotionally, physically. More than anything they need to be treated with respect and provided a quality education alongside their non-disabled classmates! This does not always mean in a separate classroom filled just for students with disabilities. All students learn from one another, everyone needs peer roll models. While I do agree in offering choices to everyone, I do not agree that just because of a persons 'extra needs' that they all should to be taught separately in classrooms away from the general school population and moved around the campus in-between regular class change times. This is 2012 not 1960!! 


That's what I believe. No matter what, most students with any number of syndromes, conditions, learning styles and academic issues, everyone needs to feel they are accepted and they are valued! Everyone wants be accepted by others and liked. Everyone wants to be included in things everyone else is doing. Self-esteem is affected when someone is left out, when someone is the last to be picked, when they are excluded from normal school & campus activities. Most student take for granted that there will always be someone that wants to sit with us at lunch time, but our students with disabilities are sitting alone every lunch hour or only with other students with disabilities in the lunch room. This IS happening today at most schools across the country. How can it be good to warehouse students with certain kinds of disabilities into cluster classrooms without any real opportunity to be part of the school community and campus life? Everyone wants to have friends, we all need friends to feel valued.


How can the majority of IEP teams, say students are being included during lunch time, hall walking & recess when all those "special" students walk in between classes & sit only with the exact same students they have been sitting in separated and segregated classrooms all day long with? How can anyone say students with disabilities are being included when for the most part they are not provided any opportunities to form friendships with their neighborhood non-disabled peers while attending school because they are with other classmates that have disabilities only? 


How can it be good to continue to treat a group of individuals [and their parents] like their education doesn't matter, pushing too many of them to be on the Special Diploma track, which is basically not working towards a High School Diploma. Parents of Special needs students parents want to be involved in their son or daughters education by volunteering, but many times their parent involvement isn't needed or wanted at our schools. 


School site based management aka as our school principals need to get-out-of-the-way and change their mind-set and open their school doors to the most dedicated, concerned involved parents ever! Parents of special needs children are being turned away and told NO to 'parent involvement' more today than ever! I hear from parents all the time about this, I have experienced this personally myself over the years. 


Parents of individuals with Down syndrome, CP, ADHD, Autism ~ GET INVOLVED AND STAY INVOLVED! Your child's education depends on it! Don't settle for segregated ~ disability only classrooms. Demand accountability from everyone that teaches and works with your child. Volunteer and have lunch with your child ~ often! Your parent involvement is VITAL!


Schools need to change their mind-set and accept students with all disabilities into the general population and into the 'regular' classrooms. Parents get involved and stay involved with volunteering and helping our schools in any activity. Schools need parents to continue to volunteer. Parent involvement is VITAL for the success of all students!


Here is a recent post on PNJ - Pensacola News Journal http://www.pnj.com/article/20120429/NEWS01/304290021
Comments to this above news article are a good read too!
http://www.pnj.com/comments/article/20120429/NEWS01/304290021/Viewpoint-Integrating-ESE-students-will-mean-success-all

Friday, May 18, 2012

What is Good Customer Service ~ in our Public Schools?

Good customer service ~ What does it mean to each of us? What does good customer service in our Public schools mean to us? 


I know for me it means the people that greets me first in a school are friendly and nice. That would be the front office person and the one that picks up and answers the school phone. 


Good customer service in a school means all staff LOOK AT YOU and maybe say "hi" to you, even though they aren't even your child's teacher. When on a school campus and most of the ADULT STAFF 'act' like they don't see you like that you are not even there, that is not good customer service! It has always amazed me how so many adult administration, teachers and staff can all act so stand offish and unfriendly. If this is what you are experiencing at your school...you are not alone. This is becoming the norm in many public schools. 


Good customer service is about treating Parents as Partners in Education. It's about working together as a community and as a collaborative team, to help educate all our children, our future generation! 


When a parent wants to be involved, accept them as partners and give them something to do, especially if they have certain talents for things and they have 'signed up' to be called to volunteer. Allow all kinds of parents into the 'inner circle' of volunteering within our schools. Too many parents are being made to feel they are not wanted on our school campuses anymore. Special Ed Parents especially are being shut out from being on the campus at all sometimes. *Only a special ed parent that has experienced this will agree that this is exactly what is happening more and more....at many schools.


The reason families make decisions to leave the Public School system is because they are being made to feel not welcomed anymore. Parents are not valued as equal partners in our child's education. Parents are tired of the closed doors and the silent treatment from 'site based management' where the principal rules over our schools like a dictatorship. 


I used to see our previous principal, Mr. Cassaw just about each and every time I visited the school to have lunch with my children. He always made it a point to say hello and even sat with us on the outside picnic tables and shared a little friendly chat. Nice man that can come out of their office to greet parents and give them some of his time and be interested enough to even get to know the parents of his students at the school. Thank you Mr. Cassaw for being a respected leader of Stephen Foster. Your leadership is missed by this involved parent. Hope you are enjoying the fishing!


Principals are the ones that set the tone of our schools. If the parents are feeling unhappy due to the 'tone' of the campus then the teachers and staff are unhappy as well! If their is an unspoken 'rule' to not be friendly to the parents or don't talk to them unless you have to ~ those are the attitudes of administration.  Site based management IS THE PROBLEM most of the time! 


I am with heavy heart writing this post, because it is how my wonderful little elementary school; Stephen Foster Elementary school has become lately....many teachers and staff are absolutely the BEST but they are few. For the most part after 11 years at the same school, it is sad to say it has lousy customer service. My daughter's school has become so unfriendly, stand-offish, almost snobbish...a few of the teachers are. Some staff have never had a collaborative conversation with me and they could have and should have in those 11 years. It is sad to know that the school I believed in for so many years has become just another Public school that isn't welcoming parents like they should.  ....all parents....especially the pro-active parents raising a child with Special needs. In conversations with others, I have listened to several parents , parents of a gifted students, parents that speak another language, parents of Special needs child and from my own experiences as well. The common feelings are common that....there is a disconnect and the communication is not there.

~ Partner with Parents and open the doors to the positive possibilities of what any and all the parents can provide to the "family-like-community" within our school. Teachers and staff....be friendly and say hi to us even if you don't have our child in your class. We appreciate all of you and what you do for our 
children throughout the school year. 


We want our school back!











Wednesday, April 4, 2012

"Natural Inclusion Supported with Peers" FIN ~ PEER SUPPORT MANUAL

FIN ~ Florida Inclusion Network has wonderful programs & services that could be implemented in our schools to help provide natural supports via Peer Supports & Inclusion naturally by providing our schools with a PEER SUPPORT Program. 


It's about our District wanting to make a positive change that has to do with how our society thinks about people that are 'different' ~ ALL Students would benefit from a program like this, especially the student that needs positive redirection & maybe a scribe or a note-taker....or a friend even. The student that needs another person some of the time to stay on task and or with mobility help or technology assistance and it's documented on their IEP they need adult and/or peer assistance. Some students needing a 1:1 Aide or Para Professional and the funding not going through for some students for them to have an Aide, PEER SUPPORT Programs should be a priority to continue to help ALL our students be successful. 


Friendships, Peer support and reaching out to help others should be a natural thing happening in our schools & society. FIN has programs that can be set up and implemented in our schools fairly quickly. 


It's about creating a PEER SUPPORT Program that will provide a way for FELLOW STUDENTS WORKING TOGETHER & BECOMING FRIENDS BY HELPING EACH OTHER. This should be happening naturally....but it's not. 


Students both without and with a disability benefit from programs like these.


PEER SUPPORT MANUAL AT-A-GLANCE
http://www.floridainclusionnetwork.com/Uploads/1/docs/PeerSupportManualAtAGlance.pdf



Building Inclusive Schools
http://www.floridainclusionnetwork.com/Uploads/1/docs/Building%20Inclusive%20SchoolsSessionDesc.-Flyer.pdf


FIN ~ Florida Inclusion Network PRODUCTS
http://www.floridainclusionnetwork.com/Research_Centers/CRSRL/Florida_Inclusion_Network/Products/General_Products.asp 

Here are a few great web links for your research on FLORIDA ESE & IDEA FUNDS ~ Have fun researching! 


FLDOE ESE ~ Direct Links & Resources
http://www.fldoe.org/ese/


FLDOE ESE ~ IDEA PART B 
http://www.fldoe.org/ese/pdf/idea-partb-09.pdf


FIN ~ BUILDING INCLUSIVE SCHOOLS 
FIN Building Inclusive Schools ~ E-learning Module

Friday, February 17, 2012

The Closed Door Policy 1.1

I have a story I want to write....a story that many will be able to relate to. It's about being a mom...or a dad of child that has unique learning challenges and requires special education while at school. Our Public Schools today have lots of students with Special Needs ~ with the increase in students with Autism and many other learning and developmental disabilities and students with Down syndrome attending our local neighborhood schools, our Public School System is not like it was just 20 years ago. 


Today if you are a parent with a son or daughter with a disability you pretty much need to go to as many parent trainings, disability support groups, disability specific conferences and national conventions just to learn how to navigate special ed services and the IEP process and basically how to help ensure your son or daughter receives a quality education via the Public School System, and that's no matter where you live!


I became an Advocate first for my own daughter and son and eventually started helping other parents learn how to be a good Advocate for their children. It has been a learning experience to say the least!


One of the things that is starting to really bug me is all this talk about Parent Involvement, especially here in Broward County. Parent Engagement is the new saying, as I have recently been hearing, I like that better. I am an involved parent in both of my children's education! I was an involved parent before I officially became a 'parent' even! My future husband, while I was dating him...I was involved in his 7 year old son's education. I eventually had him tested for possibly being gifted. I attended several of his school events before I officially was his stepmom. Education is important to me and helping children do well in school is very important to me as well!


Today, I am a proud parent to a beautiful & talented 13 year old daughter with Down syndrome and a keenly creative 16 year old son with ADHD. Both require me to always be on top of things when it comes to both of their school grades, assignments, homework and all things! To say the least, I am an involved parent ~ I have to be!


I really became a Special Ed Advocate when my daughter was born 13 years ago. As a parent to a little one with Down syndrome I learned very quickly that I needed to fight for each and every therapy service she needed. She received a great many therapies and services back then, I was a TIGER MOMMA back then as I still am today. I knew I needed to make sure my daughter had her OT, PT and Speech Therapies if I wanted her to be all she could be in the years to come! So I learned quick that it was going to take a lot of my time and dedication to my daughter to help her be her best. I was always making all sorts of phone calls to secure therapy & doctor appointments. I had to drive her to all her many different appointments daily or some came to our home when she was real little. Of course I'm devoted to her well being today as much as I was when I started on my wonderful trip to Holland. It has become my full time 'career'...to help her and others. It is my passion, to help teach parents to become confident advocates for their children. I love what I do!


My son is in the 10th grade and taking High school all in stride, his grades are still consistently inconsistent, but over all he is an amazing talented and creative soul. My daughter will be going into Middle school next year! I am so not ready for a whole new group of teachers, staff, principals and administrators that don't know my daughter at all and will give me a hard time for what I know to be the best educational classrooms settings for my girl! She has only been educated in the regular general education classrooms. This year for the first time she is now receiving an hour of Special Ed services in an ESE classrom. This is for some extra reading help using the Special Ed Wilson program, with an awesome ESE Teacher! This is the only ESE special ed class she has ever attended other than her daily 1/2 hour Speech and Language school based sessions. She is doing well included in General Education aka regular classes....as long as we have teachers & staff that fully support her.....and me too..... things can get sticky & tricky sometimes, especially if the lines of communication are not fluid. There has to be a line of open honest communication with at least ONE staff person, one that can be the 'go to person'...hopefully it's your child's teacher. My daughter has a Gifted endorsed Science teacher as her homeroom & science teacher this year and he was also her teacher last year as well. He is the role-model gen.ed teacher for others to follow in the way that he communicates with all his families on a daily basis. He sends me an email update on what my daughter did in school that day and what pages classroom lessons were on. He is teacher of the year at my daughter's school ~ with good reason! His door is always open for honest parent involvement/engagement and academic collaboration with his student's parents...and special ed parent absolutely benefit from that the most! I started a blog in his honor, because I have been so impressed with his over-the-top way of how he has provided my daughter a full inclusive classroom experience both last year and this school year. 
Please take a peek at my other blog in honor of Mr. Jeffery Allagood Mariah's 5th grade teacher: 
Down syndrome Inclusive Education www.downsyndromeinclusiveeducation.blogspot.com 


Today I want to talk about my friends. My other Special Ed / ESE Parents that are also involved and care very much about their child's education. My friends are involved and caring parents. They may ask more questions because they have a real concern about things happening at school, yet for the most part they seem to get the run around. These same parents ask to volunteer for things and are told those positions are filled. They ask to observe their child's classroom and it takes forever to set up a simple classroom observation or are asked to come into the Principals office for a little talkie-talk. Instead many ESE parents are ambushed with staff members & the principal and then told their child will have be taken out of their teachers classroom and have to go into a different classroom, starting the next day!! This particular parent just wanted to have an opportunity to observe what was going on during her son's math lessons where some behaviors were noted in written notes home to the parent. This mom just asked for a classroom observation, but instead was told her son needed to be pulled out from that classroom and wouldn't even be in that classroom again! ....Really?


Over the years many of us ESE parents have been called to come pick up our child. "Your child has a runny nose" or the best one, the most common one is, "your child has diarrhea". Like good parents, we run to the school to pick up our 'sick child'....only to find out they don't have diarrhea at all!! It seems maybe our child went to the bathroom (poo-poo) three times that day. There must be an unwritten POOP POLICY out there in our school districts that says; if a child poops 3 times while in school, they need to be sent home! Especially if that child has Down syndrome and still needs adult supervision or assistance in toileting for hygiene and wiping themselves! *This is happening way too much in our schools that maybe our top district administrators and school board members or even the superintendent is not aware of. 


I'm asking....
IS there a POOP POLICY Broward Public Schools has in place? That if a child poops 3 times, the child needs to be sent home?? ESE parents are called and told their child has diarrhea and it's all down their leg, you have to come pick up your child! Only to get there and the pants are not 'soiled'.....all down their leg!! I am not making this up! 


The runny nose one is also a very common one too. The other day a close friend of mine, was called and her daughter was not sick, just her daughter did need to have her nose wiped and blown. Mom had used Saline Solution to clear out her daughters nasal passages, and her nose was draining because of the Saline Solution. (...this is a common thing parents of children with DS do daily at times.) Mom said she was not sick, she just needed her blow her nose and have it wiped and sent back to the classroom. Her daughter did not have a fever and was not sick in anyway. This little girl never had her nose wiped at school that day and was sent home with dried caked on crusted mucus all over her cute little face! The bus aide/helper was amazed at how badly her face looked with all that dried gunk all over her. The school retaliated by not wiping her nose at all while she was in school. The little girl was not sick, she just needed her nose blown & wiped and directed to wash her hands and face or directed to blow her nose even. This is a little girl with Down syndrome and blowing her nose is something that all of us mom's do everyday... several times a day. Children with Down syndrome have low muscle tone and blowing their nose is a learned 'skill' that they need help with and they need to be taught. Our kiddo's need to be told each step of the way to 'blow hard', go wash your hands. With two aids and a certified teacher in this little girls classroom, not 1 of 3 adults would or could wipe her nose? ....Really? Needless to say this ESE mom was not happy how the school retaliated and did not provide just a simple support of wiping her little girls nose that day and instead, neglected her basic needs. ESE parents would never get away with sending our children TO school with a filthy nose or face, we would be reported, but the school gets away with this treatment of our littlest angels?


ESE Parents are wanting to volunteer at the schools to do anything and are being told there is nothing to do, they don't need help. ....Really?  ESE Parents are wanting to get involved in SAF (School Advisory Forum) and are told that "that" position has already been filled, "you can attend and participate in the PTA or the PTO." ....Really?  ESE Parents request permission to go on class field-trips or as chaperones and are told either we already have our parent volunteers or "no parents are allowed, only staff will be chaperones on the class field-trip."...Really?  Some ESE parents want to be the Room Parent, again, "oh sorry...another parent has already gotten that position." ....Really? In my over 11 years at the same elementary school for both of my children, I have never been a room parent. Who are the room parents even? Do schools have room parents anymore?


ESE Parents are met with a CLOSED DOOR and are not talked to like the 'typical parents' that doesn't have a  child with a disability. Parents of ESE children know this for a fact. Staff and teachers either are instructed to not talk to us, or if they do, to refer us to an ESE Staff person or "you'll have to speak to Mr. Principal about that." ....Really? Teachers and staff can't have a conversation with ESE parents anymore?If ESE parents want to know how their child is doing in the classroom and that child has a 1:1 aide, or there is a classroom assistant in their child's class, those aides seem to not 'see us' and certainly will not talk to us. For the most part, it seems our aides & the teachers pretend they are just so busy in their jobs that they can't even look our way when we are on the campus. ....Really?  


Over the years I have had wonderful aides for my daughter, that respected and gave me their time. Not all ESE Students are even allowed to have 1:1 aides today, being told there is no funding. That is a whole conversation in itself! More of our children are being put into classrooms with several other students that would benefit by having a 1:1 aide but our schools instead will put several students into one classroom and share the aide between several students. That's alot to ask of one teacher and alot on 1 aide, now they are called a teachers assistant. The amount of the MATRIX funds generated from just a few students could actually pay for a few teacher assistants to fully support our children in their classrooms! Your child's Matrix numbers and Matrix funding and how it is actually spent is another topic of future discussion!


ESE Parents ARE INVOLVED Parents! They have to be, their child depends on them to be! Taking their child to endless hours of weekly therapies for years and years makes for a concerned involved parent. 


What is going on at our children's schools that more and more ESE Parents are being met with this unspoken rule that they are not to be talked to with a natural honesty and respect? Why are Principals now becoming more the Headmaster that has the final say so on all things to do with our ESE Parents concerns and issues relating to their child in their classrooms?


Where did this unspoken CLOSED DOOR POLICY SOCIETY come from? Why is it happening more and more that our ESE Parents HAVE NO VOICE and ARE NOT BEING HEARD? Is it a bigger problem here in Broward school District? Is is happening throughout our entire State and Nation? ESE Parents are being shut out and held back from being part of the school society. ESE parents are not being allowed to be that involved parent at all grade levels. I was sent an email the other day from a Middle school administrator that I am actually considering for my daughter to attend. This administrator wrote to me and said, "Middle school isn't like Elementary school, things are alot different in Middle school." ....her point is? Parents ~ ALL parents need and should be encouraged to become MORE involved at the Middle school level than ever before! I know I plan on it!


Being a Special Ed Advocate I have clocked my kazillion unclockable hours listening on the phone over the years, all the absolute pure nonsense way too many ESE Parents are being put through today and throughout the entire school year! ESE Parents are good parents, they want to be involved in their child's education and show their child and their school support by being a classroom mom or by volunteering on the yearbook committee or by being a chaperone on the field-trips. 


ESE Parents are being discriminated against on many levels sometimes starting with them just wanting to know how things are or what is going on or not going on or happening at the school pertaining to their child. ESE Parents are a valuable group of good parents that care, that really care not only for their own child, but for their child's classmates. These parents are devoted!


ESE Parents are met with a CLOSED DOOR in their faces more times than not and it needs to stop! ESE Parents are not the enemy, they are and can be a great resource to many, they can be a great help to their child's teachers! If principals and staff would just stop all this nonsense of shutting the ESE Parents out and start working with them from the start! Getting off on a good foot at the beginning of a new school year is important to all parents, especially to those ESE Parents! 


The CLOSED DOOR POLICY that is practiced throughout the land today and I am talking in particular in Broward County Public Schools. I know this is happening everywhere. This attitude needs to stop and be replaced with something different! Positive parent participation with real communication and a positive partnership of collaboration ~ the child is the focus and the reason, we need not forget this!


ESE Parents can help train teachers and staff. Many times the lowest paid staff person, the 1:1 aide that usually works closest with our unique children, the para professional aide or the classroom aide or teachers aides as they are now called, these employees would benefit by having a closer positive working relationship with the ESE Parents. Parents know their child the best, what a great resource! It seems they are not allowed to talk, communicate or write to the child's parents, if they do..it's the most minimal. Most good parents would never leave their children in the care of babysitters or respite workers that they aren't able to talk with...would they? Why are ESE Parents at schools treated like staff are not suppose to talk to them? This is all too common and it's a shame!  


The door is closed at just about every turn we go as ESE Parents wanting to be involved with our child's education. The CLOSED DOOR POLICY needs to stop! 


If you are an ESE Parent, please take a moment and comment on this post. Let's hear your personal story. Tell me if your school has open arms for your parent involvement. I know some schools are absolutely doing a fantastic job of making sure all parents are treated with fairness and I know there are many schools out there that are not allowing ESE Parents the same opportunities to volunteer on campus and especially in their own child's classroom as a room parent or the room mom. If you are an ESE Parent and are the room mom...write to me! Tell me the positive, let's hear from you in the comment section below this posting. If you have experienced the CLOSED DOOR POLICY and you can relate to much of what I am posting...let's hear from you too. Post a comment, society needs to know how it really is out there trying to be an Involved ESE Parent at your child's school.


Our schools are like a little society, if the attitude is warm and welcoming for all and yes that includes allowing ESE Parents some wiggle room to volunteer and ask questions, then it creates a positive happy society. If some parents are being treated unfairly, and not allowed to be involved, it creates anger, dissatisfaction and an unhappy society! Schools need to do a better job of being accepting of ALL parent volunteers, especially by allowing ESE Parents the opportunity to Volunteer period!


The CLOSED DOOR POLICY that seems to be a secret society that only fellow ESE Parents know to be true. Time for a change of attitude across the board! Let your local School Board Members know that, Yes this IS happening to you and you want to see it change too! Do your part and help make positive changes within your school, within your school district and State. Be a change-maker and be proud to stand up for what you believe and you know needs to change!


Parents are the child's first teachers, they know every little thing about their child. Parents will always be the best advocates for their child! 

Sunday, December 4, 2011

5 Tips for Raising a Child with Down Syndrome - Big Kids | SmartParenting.com.ph

5 Tips for Raising a Child with Down Syndrome

Here are a few resources and tips for parents blessed with a child who has Down Syndrome.



It would probably be safe to say that most parents only wish the best for their children, right from the very beginning, when the woman discovers that she is pregnant. From that time on, all they want is for their child to be completely healthy in all aspects.

How should one react then when one goes for a routine check-up, including an ultrasound and screening blood test, only to be told that the child you are carrying may have Down Syndrome (DS)? For many parents, the news could be quite shocking, and may even leave some afraid and unsure if they are capable of raising a child with such a condition. Sadly, some, especially those who are misled or misinformed, may even resort to the cruel act of aborting their babies, just because they have DS.
If you or someone you know are parents of children with DS, do not fear. Many parents who have come before you learned to accept and deal with their children’s conditions, and ended up raising functional, contributing members of society. (A few examples are Chris Hebein, Molly Bourke, Elyse Mundelein and Zach Wincent).

What is Down Syndrome (DS)?
According to the U.S. National Institute of Child Health and Human Development, Down Syndrome is a set of mental and physical symptoms brought about by having an extra copy of Chromosome 21. 

Under normal circumstances, a fertilized human egg has 23 pairs of chromosomes. However, most people with Down Syndrome have an extra copy of Chromosome 21 (also called trisomy 21 because there are three copies of this chromosome instead of two). The presence of trisomy 21 leads to changes in the body’s and brain’s normal development. DS is actually the most common chromosomal irregularity in humans.

5 Tips for Raising a Child with Down Syndrome - Big Kids | SmartParenting.com.ph:


'via Blog this'

Since Down Syndrome is an incurable condition, parents must make sure their children are assessed and given therapy as soon as possible, as early intervention has helped many kids with DS live productive lives all the way into adulthood. This usually involves speech therapy, occupational therapy, physical therapy, and special education and attention in school.


Click the above link to read the FULL ARTICLE.


Love your child and enjoy the gift of life you have been given through him or her. 
Parenting in itself is a daunting task, so make sure you embrace your role with faith, hope and love. Many parents of kids with DS can testify that their kids are deeply affectionate and seem to approach life with great joy. You and your family and friends will realize how wonderful life is just by spending time with your child, or other people with DS. 


Tina RodriguezContributor

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Sources:
http://www.nichd.nih.gov/ 
http://www.downsyndrome.com
Stop Aborting Down Syndrome Individuals Now