BENSON goes to NOVA E ~ finally!!

(Below is an email I received from BENSON'S mom - just had to post here!)

Well I like to thank you Nancy for finally making it happen.... Benson is in Nova E Elem. like he was suppose to be last year because his name was picked out of the lottery. His 3 older sisters attend Nova too! He wasted a whole school year in a cluster program at another school in Broward! Oh sorry, not a whole school year, I forgot the 2 months that Broward County schools district left him behind without being in any school! I refused to let them force me to put my son in school I did not want him to go...his name was picked from the Nova E Lottery...that is where he was registered to go for Kindergarten...I went to the Kindergarten Round Up! Funny Nancy how they kept telling you and me how they had no record of him being registered there. How do they lose registrations of children after school starts?

I learned many things this past year:
1.) 90% of the people that say they know what is best for Benson, had never meet him.

2) there are beautiful laws that look good on paper, but make them work it is almost impossible.

3) definition of inclusion in broward county schools is a special need child inside a regular classroom as a guest and if possible far away from his peers.

4) discrimination from students toward special needs children starts with the way teachers introduce them to the peers.

5) if we could have more like "Nancy Harris" to advocate for our kids, cluster classrooms would be history, well maybe not for all but for those with Down syndrome anyway...

I don't really know how it will be at Nova E this year, I don't know how inclusion works in this school, what is the level of acceptance, but at least Benson is happy for now and that counts a lot for me and my family. I know we still have a long way to go, because while ignorance predominates the fight never ends for me to have good help for Benson to get an education in Broward Public schools. I am hopeful soon they will get it right and help me with my Benson because everyday is important for his education and his future success.

Thank you Nancy for not giving up on me or my son this past year!

Daniele ~ Benson's Mom

The MONGOLOID word was used today!!

Today I made so many phone calls on BENSON'S behalf. I called this person and that person. This area person and her secretary only to be told to call this person and then always to be told by so many nice secretaries that the person I wanted to talk to... "SHE'S IN A MEETING"!! I would say I called about 10 different Broward County school district people today and every single one of them was, "IN A MEETING"! Gosh maybe I need to find out where this meeting is so I can be there to talk to all of them in the same room!

I was finally able to speak to one of our schoolboard members for the Area that over sees all of the Nova schools. She apparently was out of her meeting and able to take my call. I introduced myself and told her I was advocating for BENSON. She was aware of BENSON and what mom was trying to do.

In the few minutes of talking on the phone with her, she used the word, MONGOLOID and I just couldn't believe I just heard this professional woman say that word. I actually gasped and quickly said to her, "You did not just use that word!!??" She had a non-chelant attitude about her using that word, and commented on how she had recently had a discussion with someone else about the correct term to use today. She also went on to provide me with her age as the excuse for using it saying that's the term they used when she was growing up. I was jolted by her brazen lacsidaisical attitude or that it even really mattered.....!! Do you believe this?

I know this word was used alot back in the 60's....but this is almost 2010, that's pretty much 50 YEARS AGO!! The word mongoloid is JUST NOT USED TODAY LIKE IT WAS USED BACK IN 1960! I do not buy her answer that it has to do with 'her age' and what "THEY" were called....unless she is 80 years old and showing signs of dementia! She MUST be using this terminology on a regular basis if she could so coldly use it in a telephone conversation with me within 5-10 minutes of meeting me on the phone! She knew what she was saying! I will make sure she doen't get my vote or my friends vote next time re-elections come up!

This is an ELECTED Schoolboard member that is a highly paid professional that is suppose to represent many school age families here in Broward! I told her that her age is not a good enough reason not to use the acceptable terminology when referring to an entire group of unique individuals. I told her, "you wouldn't call a person a '_igger' just because that word was used alot back in her day would you!??" I went on to tell her, "...it doesn't make her sound very professional by continuing to use that word either...!" We also chatted about PEOPLE FIRST LANGUAGE and the current politically correct way when speaking about an individual or group of individuals, such as: Children with Down syndrome, or a young man WITH Down syndrome, not a Down syndrome Child or a Downs kid.....She said, "it's hard to remember that all the time!!"....WHAT IS SHE SAYING?? That she doesn't care how she sounds or what word to use...like it doesn't matter!?

I was absolutely shocked to hear this word even being used today, especially when SHE KNOWS I was calling her about little 5 year old BENSON and why he wasn't being allowed to attend Kindergarten at the very school mom signed him up at....remember, BENSON WON THE NOVA LOTTERY! Now they (all sorts of district personnel) are trying to say he is NOT registered at any Broward County school! Mom registered him at Nova Eisenhower Elementary school, but for some unknown, untold reason...now several district people are saying he is NOT registered at any school in all of Broward County! How can that be, when she had the paperwork and information to attend the Kindergarten Round-Up? Something smells like a rat.......

I am stunned that this word is still being used by any American in the year 2009 as a descriptive of a person having Down syndrome. I am even more disgusted that a professional who claims to be serving the best interest of our children, PROFESSIONALLY can't remember how to use PEOPLE FIRST LANGUAGE and we VOTED for her to be one of our schoolboard members? RE-ELECTIONS folks...remember who your schoolboard members are and do they really represent YOU?

She doesn't want to know what my Facebook friends had to say about a schoolboard member using that word today!!

MONGOLOID.......is that a good name or word to use today? You tell me what you think....................I know it's an outdated word and used much like the word retard or retarded.......used by a schoolboard member? Something just isn't right here.....

BENSON WON THE NOVA LOTTERY!!!

My phone started ringing off the hook a week before school began on 8/24/09. Why? The beginning of new school year means many things to different people, if your a teacher, it means a classroom full of new minds to help inspire and teach. To parents, it means a new teacher for their child and early morning routines and homework struggles. To a parent raising a child with unique learning challenges, it means wanting to make sure proper help and support will be in place at school to help their child learn this year.

My phone started ringing daily exactly a week before August 24th with calls for help in advocating for their child and needing to know some advice on "what to do" and "what to expect" next week on the first day of school.

One mom has a little girl that is entering Kindergarten and is suppose to have a Para to ensure she recieves her G-tube feedings 2 times a day and also for help in the classroom with redirection and safety concerns. The Para was never hired and it didn't look like one would be anytime soon. This mom has spent the first 2 weeks of school on her daughters campus, to do her G-tube feedings and to make sure her daughter was SAFE doing well. She lost 2 weeks of work (so far) being on campus to help her daughter with what the IEP was suppose to provide.

Her daughter had been attending ARC BROWARD DEVELOPMENTAL PRE-SCHOOL for 2 years and at the TRANSITION IEP meeting which only had 19 people sitting around one of the biggest conference tables I have ever seen for a Broward School District IEP meeting. Mom and dad attended this meeting prepared and ready to have an IEP document written up with all the supports and services they knew their daughter needed to be safe and successful in Kindergarten. It was important for her health and safety that she have a PARA on the first day of school when she started in Kindergarten on August 24th. No matter how many district personnell show up and attend IEP meetings it's amazing sometimes how little gets done when it really comes time for the child to receive the supports and services the IEP "TEAM" had rich discussion about. Parents go thru so much stress at these IEP meetings!

Another mom, her son won the NOVA Lottery!! She applied and filled out all the papers to have her son attend the same school all his 4 sisters attend, one sister has already graduated and 3 are still attending there. Mom registered and turned in all the correct forms the school asked for, the BLUE & YELLOW medical records forms had been turned in, all the other forms & cards were filled out and turned in. On one form she even put on it that her son BENSON had Down syndrome. Everything was completed and the Kindergarten Round-Up date was next. She called me 2 days before school started upset that she was now being told her son wouldn't be able to attend Nova at all!! She never recieved anything in the mail or a letter stating this sad news. She was told that because of how his IEP document that was created on June 1st, 2009 was completed, saying he needed to be in a SEPERATE CLASS 100% that they didn't have 'the program' that was on his IEP! She was hurt and angry that this was never told to her...ever...all the way up to just 2 days before school was about to begin. How could this be? How could it go for so long that everything seemed to be going smoothly with getting her son signed up and started in Kindergarten at Nova Eisenhower Elementary? Why wasn't she notified that there was a 'glitch' with what was on his IEP!?

Mom needed me to help make sure her son BENSON attended NOVA and to help make things right. First things first...there needed to be an INTERIM IEP immediately to go over it with a fine tooth comb. She attended the last IEP on June 1st and it was completed then, it was only good for 2 days till June 3rd. Then the dates of the IEP started back up on August 24th, 2009 with his placement being 100% in a SEPERATE CLASS. (Mom did not have anyone or an advocate attend this very important transition IEP meeting with her!) This is NOT what the mom wanted for her son and let it be known at that meeting on June 1st, she said she told everyone at that June 1st meeting he had been accepted as a student at NOVA, and her desire to have him attend a 'regular Kindergarten' classroom and was not interested in anything that had to do with a 'special classroom' for BENSON because she was DONE WITH SPECIAL CLASSROOMS!

BENSON since the age of 3 years old had been attending 3 of the 4 DEVELOPMENTAL PRE-SCHOOLS in Broward County. I asked her why had he gone to 3 different DEVELOPMENTAL PRE-SCHOOLS in 2 years time? She said that too many 'things' happened to her son BENSON in those 2 years time and now she only wanted to protect him from yet another SPECIAL classroom that would not be good for him! I asked her what she felt he gained from going to all three of those SPECIAL DEVELOMENTAL SCHOOLS and she very quickly said to me:
"HE GOT BITE MARKS"
"REGRESSION"
"DEPRESSION"
"BEHAVIORS NOT RELATED TO DOWN SYNDROME'

This conversation was all within the first 10 minutes of just meeting her on the phone and her reaching out to find help for her son!

Of course I was upset to hear this, who wouldn't be upset...no one wants to hear of a child 'being hurt' in anyway...especially at places we entrust our precious little ones to everyday 'for school'!

In our world of raising a child with Down syndrome, we look for the best place to have them to go so they will learn and do well, not a place that is going to make their 'disability worse'!!

I want to help BENSON, I want to help this mom, I want to help BENSON get into a Kindergarten classroom that will ACCEPT and help him progress. I want to make sure that what has possibly happened to BENSON is known about and doesn't happen to another. I WANT TO HELP BENSON and his mom. I am going to do the best I can to help get BENSON into Kindergarten at NOVA Eisenhower or even NOVA Blanche Elementary. It doesn't matter which NOVA, but he won't be 100% IN A SEPERATE CLASS according to his mom! This is the school her 4 daughters, BENSON'S 4 older sisters go to. Three of them will be able to ride the morning bus with BENSON! His sister's are excited about that! They were arguing about who was going to get to video tape BENSON on his first day of going to a REAL SCHOOL! That day never came for this family...BENSON wasn't allowed to go to Kindergarten on the first day of school, or the next day or even the next week...BENSON IS STILL AT HOME WAITING....BENSON didn't get to have his first day of Kindergarten like anyone else. BENSON sits at home everyday with his mom. BENSON'S mom has lost her job because of this! She is a single mom and now has to watch him instead of going to work! What has happened to BENSON and his family should never happen to anyone! Why did things turn out like this for BENSON and his mom? Because mom just didn't know how important it was to have the IEP 'document' say the right things for BENSON'S sake. Now BENSON didn't get to experience the first day of Kindergarten like most 5 year olds.

BENSON HAS BEEN LEFT BEHIND before the his first day of school!!

BENSON WON THE NOVA LOTTERY!!!

*I have permission from BENSON'S mom to retell this story and to use his REAL NAME.

Thank you BENSON'S mom!

INCLUSION VIDEO

http://www.youtube.com/watch?v=g9-XX9227ek

Nova Lottery Window Opens to the Public Nova Schools applications will be accepted through March 31 for the 2009/10 school year. An online application is available on the District’s Web site homepage at (www.browardschools.com) or accessible directly at (www.broward.k12.fl.us/casdl/reassignmentproject/checkstdt.asp). Copies of the application are also available at the NCLB & Reassignments Department at 7770 W Oakland Park Blvd. in Sunrise. Applying online is recommended. When applying online, print confirmation page to acknowledge processed application. Only one application per student can be submitted during the window.

For additional information, contact:

NCLB & Reassignments Department, 754-321-3035.

FAQ ~ NOVA LOTTERY
http://www.broward.k12.fl.us/educationalprograms/pdf/NovaSchoolsFAQs09v2.pdf