Saturday, May 15, 2010

School lunch outside on the picnic table


















Mom surprised me the other day at school and had lunch with me outside on the picnic tables at school. It was such a pretty day with a nice breeze! With all the budget cuts in our school district my mom thought it would be a good idea for me to wear my ART CLUB T-shirt to remind everyone that ART is important to me and my friends! Please keep Art, Music and PE in my school because my friends and I love music, painting, drawing, being creative and I absolutely love going to PE because Ms. Carter is one of my favorite teachers at my school. With all the budget cuts happening at my school and in my school district I am going to miss out on learning THE FUN STUFF!


Friday, May 14, 2010

INCLUSION or EXCLUSION

The word inclusion from the dictionary means: to belong or part of. At school I think most of us would want to 'belong and be part of'.....but today, yup still today there is thinking out there that some people shouldn't belong or be part of, it's called exclusion, discrimination and segregation.

I have been part of many IEP teams in several Florida counties, my home is Broward County and I have to say I am witnessing what seems like a real push to segragate our children with Down syndrome from the general education classrooms and making parents feel like their Child has to go only  into special education classrooms or what is commonly known as the cluster classrooms instead of allowing them to be educated side-by-side their neighborhood friends and be taught in the general education classrooms with the support and services they would need to be successful. What I am seeing on a more regular basis is an increase in discrimination towards certain individuals, in particular our little 3 years olds with Down syndrome that are transitioning into what is called the Part B services (Dept of Education) with providing all the different educational options for our children with Down syndrome specifically. Busing children with disabilities to miles away from their neighborhood schools is still common practice today!

Today those with Down syndrome are being EXCLUDED from attending their neighborhood schools and in not being allowed to be educated in regular classrooms more and more! They are being pushed into or pulled out to leave and go to special education classrooms that are filled only with students that have a disability! Full Inclusion is not the first option on the minds of the educational professionals that are evaluating our Children and the certainly not the principals running our schools! There are some principals and schools that are doing a fantastic job of including students with disabilities, but the majority of our society still does not allow 'those kids' to go to all classes with everyone else!

I am sadden to know that there is still such discrimination happening in our county and in our world. There are many schools that don't even let those with disabilities use the front door of our Public schools....they use the back or a side entrance on another side of the school building!! Many time where the garbage dumpsters are located and the big garbage trucks come to pick up the school garbage! Yes the same door that was created for taking out the garbage!

WHY IS THIS DISCRIMINATION & SEGREGATION STILL HAPPENING TODAY?? I SEE IT WITH MY OWN EYES RIGHT HERE IN BROWARD COUNTY FLORIDA TODAY IN 2010!

WHY ARE OUR SCHOOLS HIDING PEOPLE WITH DISABILITIES AND MAKING THEM HAVE TO USE THE BACK OR SIDE DOORS?

WHY ARE PARENTS ALLOWING THEIR CHILDREN TO BE TREATED WITH SUCH DISRESPECT BY MAKING THEM HAVE TO USE A DIFFERENT DOOR THAN THE REST OF THE STUDENTS! STAND UP PARENTS AND DON'T ALLOW SUCH DISCRIMINATION AGAINST YOUR PRECIOUS CHILD! THIS IS ONE REASON WHY IT CONTINUES!

ROSA PARKS MADE A STAND ON WHAT SHE BELIEVED TO BE RIGHT! SHE PAVED THE WAY FOR MANY! DO THIS FOR YOUR OWN CHILD!

Thursday, May 13, 2010

Professionals and Experts

There sure can be a good many PROFESSIONALS sitting around the tables of IEP meetings, but parents are the EXPERTS not the professionals when discussing issues and concerns about their Child. Where do the professional therapist get their knowledge? They attend several years of college, they read alot and study for a good many exams to pass a State exam. By choosing to become a
therapist to work with certain types of people, like Speech, Physical or Occupational Therapist, they devote their lives to provide a service to help others...a noble profession to choose for sure! Therapist could help babies, or young school age children or adults that have maybe had a stroke and need help relearning basic life skills to be independent again. No matter what the age of the 'clientele' these professional therapist choose to work with exclusively, they want to help that person gain delayed or lost skills and see them make progress no matter what.

Today I was part of an IEP team meeting discussing how to help this little girl learn how to write basic shapes, letters, numbers and to even be able to draw simple stick people etc....she is 6 years old and is unable to write independently on her own unless she is tracing prewritten words and letters or by an adult assisting her with hand over hand to trace. As a professional therapist do you think at 6 years old this little girl should be able to at least write her first name? I know there are many factors and of course it depends on the specific disability and absolutely the expectations that we as professionals and experts place on individuals, especially certain groups of individuals with particular kinds of disabilities.

When I am advocating to get the support this little girl needed, I was provided the little girls writing journal that all little Kindergartners do all year long...to learn to write letters, draw pictures and to create little sentences or short stories. Do you know that this little girl has only done her best to create what to any mom and dad would say are her masterpieces....even though they may look like 'baby drawings' to most that see it. I was able to flip thru a year years worth of hard work this little girl created in her journal. It is and was very obvious to everyone that saw her journal at that IEP table, that she needs extensive help to learn how to write, draw and create words. But do you know that the PROFESSIONAL only recommended the absolute minimal amount of time to help her gain or learn writing skills! It was her professional opinion that she didn't need a minute more. I find this type of professional advice to not be what they know in their heart to be why they originally spent all their time in college to learn such a noble career. How can therapist make their professional opinions
pertaining to how much weekly help a client will need to gain and
learn new skills if they don't spend enough time with them to really help them? I am appauled at how unprofessional some of our professionals have become when they make professional recommendations for the amount of therapy service times for our children that are in severe need of help to gain and learn skills.

I think because they work for the school district they are only allowed to make certain recommendations and no more...less yes...but no more than a certain DISTRICT LEVEL ADMINISTRATOR INSTRUCTED amount per student in our Broward County School system. Is this right? Absolutely not! Will it change? Can it change? How can we help make a change to the way Broward Schools provides certain therapies for students? By letting others know what
has happened to you when trying to get the help your Child needs to be successful with writing, talking, walking, fine and gross motor skills. By making sure you have resonable goals written into your IEP document to substanciate the need for the support.

Write or call your State Department of Education and tell them your story! Make sure you have data to show what your Child is or isn't doing if you are trying to get a particular support or service. Here is the main phone number to our Floida Department of Education, ESE department - (850) 245-0477 and here is the main FDOE phone number also - (850) 245-0505 FEEL FREE TO CALL YOUR STATE DEPARTMENT OF EDUCATION IF YOU FEEL YOUR CHILD'S RIGHTS ARE BEING DENIED! This is just one way to have your voice heard and to help make more positive changes in our school districts for our Children! Let your voice be heard!

Being your Child's Advocate is a life long journey that we as parents
and families are the EXPERTS, not the professionals when discussing issues and concerns about your Child. Parents.....YOU ARE THE EXPERTS on what your Child needs and it is up to you to help the PROFESSIONALS have HIGHER STANDARDS and to expect LOTS of progress in a years worth, not just a little isolated goal here and there but to have BIG GOALS AND TO HAVE BIG DREAMS FOR WHAT YOUR CHIlD CAN AND WILL BE ABLE TO ACCOMPLISH! An annual IEP is written to be for a years time...make it worth it!

IEP after IEP after IEP.....HOW'S IT REALLY GOING IN BROWARD?

So many IEP's being held the last few weeks of school...I find it absolutely amazing that so many IEP meetings get scheduled at 'crunch time' just before the school year ends. I also it find it amazing how many of them are for our Children with Down syndrome....and my goodness what if parents are trying to be active participants in constructing their Child's IEP by making sure their PARENT INPUT is written into the 4 different domains! There must be a new push to try to make sure our parents words and concerns or issues are only allowed to be inserted in just the beginning section of the IEP document, the PARENT INPUT section. Where is it written to say that parents are NOT ALLOWED to provide anymore written words or parent input anywhere else on that wonderful IEP document?


This seems to be the new PUSH for our district here in Broward County that I have come across on a number of occassions...and that is to NOT ALLOW PARENTS the right to be active participants in creating the IEP document, throughout the entire document and that includes anywhere on the IEP document where needed!


So many of the pre-written up IEP DRAFTS have only the SCHOOL staff's side of the PLP=Present Level of Preformance of that child. I would think that the parents percpective would be a vital piece of information that the school would want to know about!...again...it seems our district is trying to do something that certainly does NOT MAKE SENSE...won't be the first time!


What is with that  DRAFT too....being all set up and ready to go before our IEP meetings have ever been held? The supports and services all done...PLACEMENT DECISSIONS being done by...'who' ahead of the meeting?...hmmmm...this seems to be our school principals and our districts way of controlling our IEP meetings and placement decisions and certainly where and what type of supports our Children need. Is inclusion encouraged for our little kiddo's with Down syndrome....ABSOLUTLY NOT!!! Seems Broward County Schools would rather encourage parents to file for a Due Process instead of allowing parents to be active and involved decision makers for their Child's educational needs! I think this is about not wanting to have our Children in General education classrooms anymore! There seems to be a bigger push to exclude and segregate our Children from the General school population with their non-ESE classmates!


Parents, if you haven't attended a parent training near you, it's time to start educating yourselves on how to become a confident advocate for the things you believe in! If I hear that 'there is no funding' one more time..........is it ALL about funding or is about taking away what can be funded because there IS FUNDING for our Children?


The "I" seems to have been taken out of the Educational Plan more and more!!

GOOD CAUSE PROMOTION

This is a must read for every parent that has a Child receiving ESE supports and services....you have a say in all this too!
http://www.broward.k12.fl.us/dpc/DPC%2010-11/Scheduling.10.11/ELEMENTARY/GOOD%20CAUSE%20PROMOTION%20CODES%206.5.09.pdf

Saturday, May 1, 2010

Helping others in need...from Haiti (HOST FAMILY)


Our family was BLESSED & HONORED just for doing a small 'good deed' for this family! We absolutely would do this again...being a HOST FAMILY was truly an honor!

To see this little guys progress and to learn about others that need our prayers see their website. Also to know more about becoming a HOST FAMILY visit the blog of The Medical Advocacy Team http://www.medicaladvocacyteam.com/