Tuesday, October 27, 2009

Can I observe my sons classroom and meet all his teachers?

Told at the meeting that at 'our school' we do this and we do that....we believe in inclusion for ALL students. I wanted to fall over when hearing this, almost sounded too good to be true. Could it really be that at least one school in Broward County really does do things right? Mom was skeptical, with every right to be so....she wants to see her son be happy in a classroom where he will grow and be happy.

.....but when we asked if we could see the classroom after our meeting...there was a look I won't forget....I want to believe this school is going to 'do the right thing' for this little kiddo, and that they really do provide inclusion for ALL. Not the 'be good and earn' gen. ed time, but really do provide lots of opportunity for all students to spend time in a regular education classroom.

It's been 20 days since his first day of school and mom still hasn't been able to see her son's Special Ed classroom or even meet his General Education teachers in the Gen. Ed classrooms we were told he is suppose to be part of everyday. Mom has yet to get any notes home letting her know what and how her son is doing while under their care. Mom wants to SEE and meet her son's teachers....all of them. She needs to SEE what her sons classrooms look like and have an opportunity to meet and have a little conversation with ALL of his teachers....that's not asking much...I think most parents absolutely would want to know WHERE their Childs classroom is and WHO their teacher/s are! What is wrong with this picture IF mom is not able to meet, talk, see for herself exactly where her son is during his entire school day? Open house happens at every school, parents attend to meet and greet their Childs teachers and see their classrooms...but how does that happen when her son started school SIX WEEKS after the beginning of the school year?

Do we really believe this school is providing inclusion for ALL students? I don't know, they certainly aren't providing inclusion of the parent wanting to just meet her sons teachers and to see all of the classrooms he participates in. As the parent advocate I have sent out my email requesting an ALL DAY observation to see how 'things really are' going for him throughout his entire school day. I haven't heard back from the ESE Specialist or the ESE Teacher that works with him all day. I am hoping 'they are doing the right thing' for this little guy....and I pray they open their doors for this mom...she has a right to know what her sons classroom LOOKS LIKE and she has a right to MEET ALL HIS TEACHERS and know exactly what his daily schedule really is. If none of these things happen...I would say there is some deception going on.....but would that surprise any of us...really?

What will mom do?....what would you do if you were in her shoes?

We just want to OBSERVE his educational environment....mom wants to make sure her son is happy and progresses, since so much time was wasted and he didn't get to start school till 6 weeks AFTER school started for the entire County!

This school needs to 'do the right thing'...and be parent friendly and allow this mom access to her sons teachers and let her see how he is doing being included in the general ed. Kindergarten classrooms.

If you have a comment to this posting...please post it and let's hear from you and your experiences pertaining to OBSERVING your Child's classroom/s.

Thursday, October 8, 2009

"It's an IEP Team Decision"......ever hear that?

Ever heard this before? "It's an IEP Team Decision"... What does it really mean? When you are at your Child's IEP meeting, have you ever heard this said before? Yes parents are part of the IEP team, it's good when you speak up and provide your input, concerns and suggestions....but when it comes to  having the document really say exactly what your input or your suggestions are, it's like a knockdown drag out fight to get the simplest of support or service actually written in. Even the SUPPORT & TRAINING FOR PERSONNEL piece of the document...egads those working closest to and with our Child, should be "required" to receive some training!...how do we parents ever know if teachers and para professionals have actually been trained? We never do! Where does it say specifically that they actually have to 'be trained' and by what date?...usually....this too shall become nothing on that IEP document...it's a legal document right?

I can not believe how the majority of IEP team members are usually on the 'opposing team' to what the parent is advocating for. There is no "IEP team decision"...it's a district wide decision many times ESPECIALLY when it comes to PLACEMENT of our Children with certain 'eligibilities' into a certain type of classroom environment!...only to hear repeated like it's the mantra 'they all chat' while brushing their teeth in the morning before going off to attend yet another one of 'those meetings' with one of 'those parents'....they get paid for attending these IEP 'team' meetings day in and day out! These meetings don't give them diarrhea like it does the mom's of those Children! Parents are STRESSED OUT and fighting hard to have their Child provided a good classroom with good supports to help them be successful! Parents know best, but are never really heard and often times their suggestions or concerns are not really 'taken into consideration'......usually shot down at every corner they turn...every real concern or support the parent suggest many times falls on deaf ears of the entire IEP team!

The majority of our 'school society', and that means teachers, principals and especially district administrators and staff, schoolboard members and Superintendents even....still do not really believe our Children with disabilities should be 'allowed' to be taught in a GENERAL EDUCATION CLASSROOM with their friends that live in the same neighborhood! I am sickened by the uneducated and outdated way of thinking that so many running our schools have today in 2009!

They call themselves professionals and say it "at us" in a degrading sort of way...during our IEP meetings, as a way to talk down to parents! Because 'they have' this or that degree in Speech and Language Pathology ~ THEY ARE THE PROFESSIONALS!!! Of all people that should understand the most about fine motor delays in speech and language and communication....some of the so called 'most educated' from a BOOK...have NOT-A-CLUE what it means to provide a support or service to a Child that needs it the most! (They have been instructed from their 'higher ups' on what to say and provide!..do not go over!!! Everyone wants to keep their job and that paycheck coming in!) Most times the highest degreed IEP 'team members' are the very ones that have no idea what it's like to really help a Child be all they can be! Mainly because they don't believe certain individuals will ever really amount to much....they went to school to get that degree for?...for what? To deny the very support or service they could provide to help a young mind learn skills they struggle with, so they can be better at it in the long run..for life!

Why do people go for the Professional degrees they have, to work with Children with disabilities in the first place? IMHO: To make money OFF the delays and disabilities of the very students they don't 'really believe in'? I think our Children with Disabilities are a COMMODITY...seen only as a means to earn a living off of them! If this is not true to some degree...why are the professionals providing MINIMAL support across the board and only giving out a one size fits all service, no matter how hard it is to understand a person 'communicate' or 'write'.....needing OT-Occupational Therapy...or how funny they may walk because of certain genetic conditions...if they can stand up and walk and they ''can navigate the school campus''...what more do we want from those professionals during the school day?

I see too many IEP 'teams' act as though they haven't a clue about doing the right thing in providing WHAT THE CHILD NEEDS and only go by what 'they are instructed' to carry out by the end of that IEP 'team' meeting...us against them....who's gonna win.....well certainly not the Child!! Two opposing teams...certainly not all on the same team, but out to deny!!

It's been a stressful day of advocating for the rights a Child to be educated in a General Education Classroom today. Trying to secure the needed supports and services so the Child can be successful....I am up against 'the district'.....THE DISTRICT wants this student where they WANT THAT STUDENT and that's the bottom line! THEY WANT TO SEPARATE and put this Child in of 'those cluster classrooms' without ever once providing an opportunity or chance to attend a regular general education classroom with all the supports and services to be successful...why???...because for one..."it's an IEP Team Decision"!! and THE TEAM believe that Child "NEEDS" that type of most restrictive setting! Do they even care what the parent wants and knows their Child needs? NO THEY DO NOT CARE WHAT THE PARENT WANTS FOR THEIR CHILD!!.....The Professionals...THEY HAVEN'T A CLUE!!.....many times they aren't even a parent.....and of course they aren't raising a Child with Down syndrome or Autism or any number of unique learning challenges...how could they possible know what we know....we didn't get our EXPERT KNOWLEDGE from attending college....we shed our blood for these Children!!!

Our 'school society' is pushing our Children with Down syndrome especially, away and into SEPARATED and out of sight SPECIAL classrooms...usually in a portable or a back classroom, away away away from the general population! Oh let's not forget they will "INCLUDE THEM" during lunch and recess and specials!...might get lucky and get an entire 15 minutes of GEN.ED time during a REGULAR KINDERGARTEN CLASS CIRCLE TIME!...15 WHOLE MINUTES!!!....and that's ONLY if the Child BEHAVES for those 15 minutes!! Oh assuring the student would get ALL THE SUPPORT he needs!!...We should be grateful we have such caring and knowledgable professionals making Individual Education Plan Placement decisions for our Children! We are GRATEFUL!

I will wake up again tomorrow to fight the good fight all over again....certainly not making a regular paycheck doing it either! I am trying to contribute financially to our family expenses, but am I doing these 'advocacy fights' for the money....for the most part no! I work for FREE much of the time! I do this with a passion because I believe in the Children that need us the most! I believe in their futures and their abilities to do great and wonderful things...so I fight for them! They can't.....many times their parents can't.....but everyone is learning. I see myself as a coach to parents! I love what I do, I love the little kiddo's I am speaking up for, I believe in their futures and I believe in their RIGHTS TO AN EDUCATION! I am a parent to a Child with Down syndrome, all of my friends have a Child with Down syndrome or Autism or Prader Wili or CP or any number of things...these Children are NORMAL to me and my friends...they are our Children!

I hope...when it's all said and done at the end of the day, everyone that sits in on an IEP team meeting...that they can honestly say....they spoke up and supported the parents hopes and dreams for their Child. That they believed in that Child and did the right thing. What would you want if it was YOUR CHILD we were talking about? You would want the IEP team, to do the right thing! You would want your Child going to 'regular' classes....like everyone else!

I know more than anything, bottom line...everyone wants to keep their jobs and they have their instructions to carry out from their 'bosses'....it is so obvious that it's a district wide 'thing'....nothing is going to change unless those running the entire school district open their minds to 'doing the right thing'!!!

Elections for Schoolboard members when those come up....get to know who you will be voting for! Do we need schoolboard members that still call our Children MONGOLOIDS?! I think not!

Thursday, October 1, 2009

Subject: Benson still not in school yet

From: BENSON'S MOM
Sent: Wed., Sept. 30, 2009 3:50 PM
To: nancy.harris@dsadvocate.com
Subject: Benson still not in school yet

Hi Nancy
I would like to express my frustration to you regarding this ridiculous time Benson is out of school, because seems that the county doesn't care. He is the one that suppose be in kindergarten and what I see is people from broward county schools acting like kindergartners and try to blame you and you are the only person that is trying to help us from their nonsense, like she say, he say, I have a date for his meeting, no I don't have a date, when I called Ms. Bennett most of the time I hear she is busy or in a meeting, what is that? Where are the professionals they should see that this is not right.

I am not asking for anything that they don't know that is what the law specific says A CHILD SHOULD BE IN THE LESS RESTRICT ENVIRONMENT. I know they have a lot schools to deal with, but it has been 5 almost 6 weeks that Benson is out of school and nobody cares.

When he was at Ann Storck Preschool and I question the reason for him to be in summer school extended year, they told me he could not be without school for this long period of time, that he would only benefit from that, they tell me how important was for him to be that extra month in school so he would be ready for kindergarten and bla, bla, bla, and now it is ok for him to sit at home without any "professional instruction?" That is another reason I am fed up with special programs, they just talk and say how important and beautiful the program is. Do you want to know how many times I go to any of those special schools and my son was sitting there by himself without any activity? why? they don't care, the kid can't tell the parents anyways right? Once when I questioned them they told me he didn't want to participate on the activity, ok so where was the professional that he deeply need as it says in the IEP to use their knowledge, and get him involved. What any of the regular kindergarten can't offer him more than a special cluster could? What services and care does Benson need that can not be achieved in a regular kindergarten? I been asking this question in those IEP meetings since he starts and nobody can answer me. After a while I realize this is the way it works: well the kid doesn't want to participate for whatever reason so leave him alone there doing something else. There is no effort from anyone at all.

Where is the one on one they talk about when they first meet you? Where are the experienced with our special kids? Where is the beauty of those programs? I don't need a babysitter Benson, I want a place for my son to learn, to have good role models, a place where he feels comfortable staying and I feel comfortable leaving him. Not a place where I see him everyday losing good skills, getting odd behaviors, being sad and withdrawn.

And for people to say they have very busy schedules to make a meeting to put him in school it is nonsense, they are just postpone and denying his rights to do and be a little kid in a regular kindergarten school and for me this is discrimination. Thank you Nancy for helping me, you have my permission to put this on your blog about my son.