Showing posts with label Down syndrome Inclusion. Show all posts
Showing posts with label Down syndrome Inclusion. Show all posts

Friday, August 8, 2014

A REAL High School Diploma ~ Now we're Talking!!


*Click on Photo above to enlarge photo.

SB 850 2014 ~ Florida
Now maybe it's safe to go back to Public Education! 

*BTW ~ THANK YOU to EVERYONE that has Advocated Hard On The Steps 4 CHANGE!!! Today there is New Progress with the MIND-SET & LAWS in the EDUCATION BUSINESS pertaining to our many Students with UNIQUE ABILITIES and their RIGHT TO EARN A STANDARD HIGH SCHOOL DIPLOMA!!!
THANK YOU FLORIDA ADVOCATES!!
Nancy Linley-Harris 
August 8th, 2014 

Here is the link to the PDF Doc. that explains about SB 850 Click highlighted link below here:

Nancy's doing the HaPpY Dance...the HaPpY Dance!!!

Can't wait to see how IEP meetings DO THINGS NOW!!!! Maybe it's Safe to have Mariah Elizabeth attend a Broward County Public Schools again?? Nahhhhhh not yet!! We're having too much Fun doing things OUR WAY right now! Not ready to go thru the IEP Process again....yet.


This is BIG CHANGE to the Mindset and maybe the attitude of some, I hope so anyway. I know a few people that should now be BLUSHING IN SHAME for the way many of our students have been shamefully NOT Educated to Learn & Earn a REAL High School Diploma! I know that's all I have ever thought my children would Graduate with! 

Dreams really do come true folks!!


Sunday, January 26, 2014

SPD = Sensory Processing Disorder ~ The Chronicles of Ellie Bellie Bear

Sensory Processing Disorder ~ The Chronicles of Ellie Bellie Bear

So What Exactly Is SPD? 

If you happen to be like me, Sensory Processing Disorder [SPD] is a new experience and a bit confusing.  Okay, it is really confusing.  As you start to read all of the checklists and behaviors that might be associated with said disorder, you start to think “hey, I have that.” or “OMG, my child has that for sure!”.  The fact of the matter is that everyone has some of the behaviors on the checklists and that is absolutely typical.  It is true.  What makes it a disorder is that it affects one’s ability to complete tasks, learn, and / or communicate.  The sensory issues are so severe that they impact daily activities of living [ADL].

History:
While SPD may seem like a relatively new phenomenon, it was studied by Dr. Anna Jean Ayred, PhD, OTR since the 1960s where she coined the term “sensory integration dysfunction”.Ever hear of the book “The Out-Of-Sync Child” by Carol Stock Kranowitz from 1995?  This author touches on SPD and that was in the mid-1990’s. Since then, starting around 2007, Sensory Processing Disorder and Sensory Integration Disorder have become more widely studied.   HOWEVER, there is no actual ICD-9 medical code for SPD. . . YET.  An ICD-9 is a diagnostic code used by medical providers, OTs, etc.  For example, Down Syndrome has a ICD-9 code of 758.0 Without an ICD-9 code, billing to insurance and obtaining therapies is rather difficult.  

How is it that a disorder that has been around for over 50 years does not even have its own diagnostic code?  How is it that there is no definitive diagnostic tool for SPD?


http://ellietheurer.blogspot.com/p/sensory-processing-disorder.html

The Chronicles of Ellie Bellie Bear continues because I want the world to see what I see just how wonderful and utterly perfect my daughter is, designer genes and all.  That our little Bear-Bear has more determination and motivation than most adults I know and that she is surpassing all of our expectations.  That, yes, there are challenges and yes, sometimes thing are hard, but Ellie is our beautiful, sassy daughter who completes our family.


*A note from DS Advocate Blog writer, Nancy Linley-Harris: I like to share fellow bloggers stories that help educate society to a better understanding of 'our world' of raising a wonderfully unique person with Down syndrome. If you are interested in having one of your stories featured and shared on one of my blogs please send me a link to your story. 
HaPpY Blogging!! 
Nancy ~ DS Advocate

Friday, July 26, 2013

"Mariah speaks" ~ Before Broward County Public Schools over the Summer on July 23rd, 2013.

Mariah speaking before Broward County Public Schools over the Summer on July 23rd, 2013. M_07_23_2013 Her speech although unclear, was provided in writing to the Superintendent and all the School Board members so they knew what she spoke about at the podium. 

Mariah speaking before the School board over the Summer was something she wanted to do....by herself, without me standing next to her. She and I discussed what should she talk about if she was no longer a Broward County Public School Student. I withdrew Mariah from Public education in Broward before the school year ended on May 24th, 2013.


I didn't give up on Public Education... 

...Broward Public Education 
GAVE UP ON MARIAH!!

Although I filed a State Complaint pertaining to her school holding an illegal 10th IEP ~ 4 days after she had been withdrawn from attending Broward schools and was no longer a Student in this district. Naturally, I lost the State Complaint.....enough is enough of the games this school district and the State has put me thru in my trying to secure a 'real education' for my daughter, Mariah. 

This video provided by BeconTV is the entire July 23th, 2013 School Board Meeting. The Pubic Speakers begins on the Video at 143:00 with School board Chair, Laurie Rich-Livenstein opening the meeting for Public comment. Mariah is called as the first Public Speaker. To see the beginning of where Mariah starts go to 144:00 on the Video. I speak just after Mariah at 148:50 on the Video. 

It is worth a watch to see the other Public Speakers at this Summer Broward County School Board Meeting.

I am so proud my daughter wants to SPEAK OUT and become a Public Speaker. What she has to say is worth hearing. 

Written below is Mariah's actual July 23rd, 2013 Speech she spoke before Broward School Board meeting.

Hi !!

*Pause & SMILE

My name is Mariah Harris, I am 14 years old and in the 6th Grade.

I am in the Nova  U-Na-Ver-ciTy  School of the ARTS Drama Camp. I am a dancer, singer, actress and will be in the Disney MULAN show August second. I have teachers and helpers that support and BELIEVE IN ME! Want to come see me on the stage at the EP-STEEN Center?

I went to Horse Camp for 2 weeks and had a lot of FUN! FIRE is the name of my horse. I met new friends that liked me and BELIEVED IN ME at the Ranch!

I am on the SWIM TEAM at River Land Pool. Back Stroke is my best stroke. I Like doing Free Style and I'm learning the Butterfly. I love going to Swim practice every day! My Coaches BELIEVE IN ME!

I love going to the Movies and Cooking.

I am having a Great Summer.

I need people to BELIEVE IN ME and see that I CAN do it!

Do not JUDGE me because I have Down syndrome!

I am Mariah Harris, I love school and I'm a good student!

I have always been fully IN-CLUDed with an adult to help me.

BELIEVE IN and IN-CLUDE more students with Down syndrome in all of our schools!!

Have a good day!

Thank you very much.

SMILE

Mariah Harris

Monday, June 17, 2013

Segregation is still alive as a: Tampa mom fights to keep her son with Down syndrome in his neighborhood school!

Tampa mom fights to keep her disabled son in his neighborhood school

This advocate mom, Roberta Moore and her 10 year old son, who is also a student with Down syndrome, just like my daughter, Mariah is up against the SAME THING that I have been experiencing here in Broward Public Schools as well! It's parents like us with children like ours that are being DISCRIMINATED against on so many levels in the Public Education System, especially here in Florida. I have spoke before my school board, several times. This same thing is happening to so many students...everywhere! 

In Tampa, Roberta Moore attended an IEP and was absolutely against what was being suggested for her son's placement for his next school year. In Fort Lauderdale, an IEP was taking 10 meetings to write up with the suggestion from the school side of the IEP "team" leading towards having Mariah's class placement for her to be in FULL ESE CLUSTER ALL DAY FOR ALL HER CLASSES, with the exception for her to be able to 'come out' so she could attend her STEM MAGNET CLASS in a General Education Classroom. LUNCH TIME would be her other allowed time to attend school with her friends and peers without disabilities. This sort of special classroom placement suggestion was not anything Mariah was used to. Mariah has always attended the same classes as her friends she goes to school with. Mariah has always been educated in 'regular classes' and fully included in gen.ed. classes all her life. Now it seemed to be the push of her school and the IEP "team" that it would be better for her to only attend school in an ESE classroom. Same with Roberta Moore for her 10 year old son, this too was not what I wanted for my 14 year old daughter either! 

Senate Passes Bill Empowering Parents in Critical IEP Decisions

http://capitalsoup.com/2013/04/29/senate-passes-bill-empowering-parents-in-critical-iep-decisions/

I am not a teacher, but have always 'homeschooled' part-time because it is good for her and I know what is best for my daughter and her education. As her mother and her truest advocate, I know and believe in her plans for her future career choice! Mariah has always had the desire to work with animals and become a Vet Tech and go to college one day.  It's up to me to make sure that happens for her....all other's need to either support her in teaching her a quality academic education or just GET OUT OF THE WAY!

I withdrew my daughter, Mariah on May 24th, 2013 from Broward County Public School District. I enrolled her in a small private Christian school that has graduated many many students over the years! Mariah and I are very much looking forward to her new school in the Fall without so many 'cooks in the kitchen!'

I filed my official STATE COMPLAINT with the Florida Department of Education on June 7th, 2013. What's being allowed to happen to so many of our students with disabilities throughout the entire State of Florida, particularly students with Down syndrome is ripe for a CLASS ACTION LAW SUIT! Who's in?

If this same thing has happened to you, I highly recommend filing a STATE COMPLAINT! 

Senate Bill 1108 goes into law on July 1st, 2013!
click above link to learn all about what SB1108 is all about.

Public Schools get extra funds to help educate our children, but it seems instead, the Public School system is possibly using the $$MONEY$$ our special needs students generate. Our children's educational money is being spent however Principals and District Administrators want. Our children's special education funds are being spend on all sorts of things other than for those very students that need the extra support.

ESE Teachers in those ESE classrooms are not always provided the most basic of supplies that other teachers and classrooms are afforded. It's the ESE students extra funding that is attached to them for the extra they may need, yet the many ESE TEACHERS are not given a reasonable budget to spend on classroom supplies, so all the students suffer by not having what the 'typical' students receive at school each and every day. Let's talk TECHNOLOGY, TEXT BOOKS & CURRICULUM in ESE Classrooms! 

So instead of INCLUDING our children into regular classes, schools are using our children's special education funds aka as their MATRIX Funding elsewhere instead of for my child. Our Special Ed Students are a cash commodity for schools today! 

Schools and the Districts are pushing to have all Special Needs students in the same classrooms...it's called SEGREGATION & DISCRIMINATION! ~ This is 2013 people!! Martin Luther King would be applaud at what is still going on with Discrimination!!

Guess my leaving and pulling my daughter from Broward Public School "before" the big boom to herd all SWD=Students With Disabilities off to Special Schools and all ESE special classes and Special everything is a good thing that I WITHDREW my daughter completely from Public Education when I did! My daughter will be fully included at her new school, where she'll be respected and accepted for the wonderful student and person she is. 

Many SWD that have recently graduated with Standard Diploma's or what's commonly known as a REAL HIGH SCHOOL DIPLOMA have all 'just made it under the wire!!!" They are the LUCKY ONES today!!

It's time for us to work together to help all SWD and future SWD have the opportunity to be accepted into regular classrooms. This is not something we all should have to even worry about this day and age, but in Florida we do! Florida as well as many other States are still very much behind in treating people fairly, especially when it comes to our public education today and our students needing special education support and services. 

Being treated unfairly and being left out is not something new to SWD and their families, especially families that have someone with Down syndrome. We know all to often the feeling of things not being 'fair'. We have all felt discrimination and it hurts every time we are being discriminated against, for wanting what is every one's right and freedom...a PUBLIC EDUCATION! 

We all know that raising a child today is not easy, with or without a learning disability, but certainly if your child has a disability, our families experience alot more funky situations than most families would ever imagine and people take for granted. We have to deal with the unfairness on a regular basis because our child has Down syndrome. *or any other disability.

It's 2013 people ~ SEGREGATION & DISCRIMINATION need to STOP!

http://www.myfoxtampabay.com/story/22567697/2013/06/12/should-special-needs-students-be-in-mainstream-classrooms#.UbiaH2fXW61.facebook

http://www.cfnews13.com/content/news/baynews9/news/article.html/content/news/articles/bn9/2013/6/12/mom_of_boy_with_spec.html

http://www.abcactionnews.com/dpp/news/region_south_hillsborough/tampa-mom-fights-to-keep-her-disabled-son-in-his-neighborhood-school

Tuesday, June 11, 2013

Nancy Linley-Harris Public Comment to Broward School Board members on June 11th, 2013


6/11/13 Nancy Linley-Harris 
     This is MY STORY and I have no reason to lie about what a craZy and stressful school year my daughter's Middle School had put me through! This is my speech and my Public Comment as to some of the main reasons WHY I felt my daughter would no longer be able to receive a "World Class Education" if she continued to attend a Broward County Public School.

Just 18 days prior to my speaking publicly before the school board on June 11th...I had officially withdrawn my daughter on May 24th, 2013 from Public Education in any Broward County Public School. This was not something I would have ever thought I would do. I feel I was FORCED to remove her from Broward Schools because enough was enough, there was no trust in the ESE Department anymore. I was also being forced to file a 2nd Due Process within a 7th month time period, Mariah's 6th grade school year. Personally, I believed nothing was ever going to be in Mariah's favor because of a corrupt Special Education Department, with the school based ESE Specialist probably being given permission or orders to keep moving forward with what the ESE District and/or ESE Legal staff 'wanted on Mariah's IEP'...so much had been taken away from my daughter's education via the "IEP Process."  She was forced off the regular diploma, and at each IEP meeting, school staff keep pointing the document in a direction that was leading to the most restrictive classroom placement and not including Mariah in regular classrooms any longer, except to continue to allow her to attend her STEM MAGNET Class time only in Gen ed. I told them they were nuts to think I would agree to that!! My daughter was part probably the first person with Down syndrome part of the STEM Magnet Program at Parkway Middle School in Lauderhill, Florida. 

I think the Parkway ESE staffers, (the ESE Specialist mainly) did all they (she) could to tear down my daughter's inclusive education, because they (she), I feel was given 'permission and the go-ahead' from the higher up ESE Department Administrators to do whatever they (she) could to STOP and prevent me from advocating for the Public education I thought was best for my daughter. My main concerns for my daughters Public education was that the district no longer was allowing her to be educated to earn a regular high school diploma and then Mariah was being forced out of being able to attend all regular general education classes. She has always been fully included and this school knew how important that was for me for my daughter, but none of them cared what I thought about anything pertaining to my own daughter's education. 

Mariah's READING & MATH IEP GOALS WERE  MALICIOUSLY REMOVED

Parkway Middle School can be a great school for some students especially if your Child is interested in the ARTS and loves dancing, acting or singing and if your child is Gifted and also if your Child would be suited for the STEM MAGNET Program. Parkway Middle is not a good school if your child has an IEP and needs Special Education and has Down syndrome. Especially if you're looking to have your Child fully included in with the general population of students, Parkway will hold so many IEP meetings and will make sure the IEP is not anything a parent wants by years end or sooner! 

The Intensive reading teacher and the math teacher assigned to my daughter were not teachers that should have ever been allowed to be my daughters teachers for longer than 6 weeks. Neither of them should have been allowed to have my daughter as long as they did in their classrooms! Those two teachers were more interested in showing that Mariah didn't fit in their classes and they just wanted to show my daughter as failing and telling the IEP team only negative. Those two teachers were not interested in teaching Mariah and certainly didn't care to teach her reading and math!! How disappointing to have to deal with teachers that didn't believe in your child or respect her as a wonderful student or her mother! To be honest, what a nightmare to even deal with such negative teachers not interested in helping a great student be successful in Math and Reading! It would be great if parents would be allowed to grade their children's teachers....the truth would be told about some really crappy teachers that are inflexible and closed minded to teaching diversity and teaching ALL students. What a shame they are allowed to pick and choose which students get educated or go to the 'expensive babysitting program' aka Special Education for some (MANY) ESE Students!

Parkway Middle School 'started out as a great school' for Mariah, because of the STEM Magnet Program she was in...too bad Mariah didn't get the kind of support she really needed to get more out of that program. The STEM Program is a really awesome program for ANY & ALL STUDENTS!

In my speech before Superintendent Runcie and the School board members on June 11th, 2013....I sound mad....because I was! I was mad for sure!!! I was so mad that my daughter had been pushed out of being allowed to be educated academically like I wanted for her. I was so mad at all the nonsense the ESE Specialist had put me through while my daughter attended that school. She was not a nice person to me and she was personally doing all she could to make Mariah's IEP document just the way SHE WANTED and was making sure each step of the way and each and every long drawn out IEP meeting after IEP meeting that my parent voice advocating for what I thought was right for my own child...she was a nightmare staff person without a doubt that I wouldn't wish on any parent to have to deal with!

With all the ESE Budget cut backs being talked about for the next 2013-2014 school year in Broward Public Schools, it would be my suggestion and in the best interest for students at Parkway if the ESE staff and a few teachers are hopefully those losing their jobs! They all have shone me that they absolutely do not care about students like my daughter....a student with Down syndrome. 

My daughter lost a years worth of academic education at Parkway Middle School because the ESE staff, the reading, math and language arts teachers sabotaged her legal IEP document to be written just the way they were wanted and "instructed to write it!"

This is MY STORY and I speak the truth of what happened to me and my daughter's Public education at Parkway Middle School in Lauderhill, Florida via the IEP "Process." Personally I feel what has happened to me this past school year is a form of bullying and retaliation by the corrupt ESE department very much including the school ESE staff and the Legal and Due Process Department employees.

Enough is Enough!! I WITHDREW MY DAUGHTER FROM BROWARD COUNTY PUBLIC SCHOOLS ON MAY 24th, 2013 ~ This District doesn't care about teaching my daughter, teachers don't believe in her....she has Down syndrome. 

My Public Comment is MY STORY! 


Monday, June 3, 2013

ALL SCHOOLS NEED PEER MENTORS & PEER BUDDIES ~ FIN CAN HELP WITH THIS

Davidson eighth-graders assist special needs classmates

By BRIAN HUGHES / News Bulletin 
Published: Thursday, May 30, 2013 at 18:54 PM.

CRESTVIEW — It takes a special kind of student to be a Davidson Middle School buddy. In fact, school officials said, it takes the "crême-de-la-crême," or cream of the crop.

The program, in its 10th year, links specially selected eighth-graders —  the buddies — with students in the school's exceptional student education program.

"They are peer mentors," program director and E.S.E. teacher Carol Cassity said.

READ THE ENTIRE ARTICLE by clicking this link -->
http://www.crestviewbulletin.com/education/davidson-eighth-graders-assist-special-needs-classmates-1.151264

My 2 cents worth=I've been encouraging Broward County Public Schools to get this started for years now...FIN-Florida Inclusion Network has this program and could help Districts with this getting up and going in all our Districts...IF they wanted to. This is the program I wanted to VOLUNTEER to help get it started at my daughter's Middle school...didn't happen...but is still needed everywhere! 

Let's get this going in many more schools and not just Middle school!

Monday, April 8, 2013

"Be The One" ~ It Starts with A Voice ~ Starring Lauren Potter


"Be The One" {Music Video} from Life Stage Films on Vimeo.
from It Starts with A Voice - www.itstartswithavoice.com

"Be the One" Written, Recorded, & Produced by Amy & Ben Wright
Starring Lauren Potter
Directed by Matt Davis of Life Stage Films - www.lifestagefilms.com
Purchase the song on iTunes to benefit Best Buddies International

"Like" us on Facebook at:
https://www.facebook.com/ItStartsWithAVoice?ref=hl

Step off of the sidelines and be the one who makes a difference in someone's life. www.BestBuddies.org

Wednesday, December 12, 2012

My Due Process Final Orders Online ~ 12-3961E Filed 12.12.12

My DUE PROCESS Final Orders online!
http://www.fldoe.org/core/fileparse.php/7675/urlt/0069820-12-3961.pdf

Want to read about a few DUE PROCESS Final Orders received in Florida? 
January - June 2013 on the FDOE website.
Case Number                 District Order Date
12-3961E (PDF, 234KB) Broward February 28, 2013

12-3961E is my DUE PROCESS Final Orders, that are now PUBLIC! I will be posting the TRANSCRIPTS too!

To read other DUE PROCESS Final Orders between Jan.-June 2013 in Florida click this link:
http://www.fldoe.org/academics/exceptional-student-edu/dispute-resolution/due-process-hearing-orders/2013.stml
This is the OLD DEAD LINK that was listed on the FDOE website that is now a dead link. I think the FDOE does this every so often to create dead links to documents. http://www.fldoe.org/ese/due-order.asp

In order to fully understand what all the original issues and concerns were and my reason for filing such a long laundry list of IEP/ESE concerns and ultimately led to my filing for a due process in the first place, you may want to read my original email sent to Broward County School Superintendent Robert Runcie in my previous blog post. 

It has been an absolute nightmare navigating the IEP "Process" as it is now operating in Broward Public School District today! 

Parents have had NO VOICE OR SAY-SO in the educational decisions being made for our Children at these often times, contentious and confrontational IEP meetings for our Children.

SB 1108 will create some good changes for parents at the IEP tables in Florida.