Showing posts with label Down syndrome Florida. Show all posts
Showing posts with label Down syndrome Florida. Show all posts

Tuesday, May 20, 2014

Customize your Child's Special Education with Florida Personal Learning Accounts SB 5103

CS/SB 5103 
This Bill takes effect July 1st, 2014

Students with Disabilities; Establishes Florida Personal Learning Account Program to enable parents of students with disabilities to customize their child's education using wide range of instructional services; provides student eligibility, responsibilities for program participation, administration & funding of Florida Personal Learning Accounts, & DOE, nonprofit scholarship-funding organization, & school district obligations.

http://www.flsenate.gov/Session/Bill/2014/5103/ByVersion

http://www.flsenate.gov/Session/Bill/2014/5103/Analyses/h5103a.EDAS.PDF

PERSONAL LEARNING ACCOUNTS!
Down syndrome, Autism, Occupational Therapy, Medical Services, TUTORING, EDUCATIONAL CHOICES, Academic Services, Private Schooling. Thinking of HOMESCHOOLING? Are you already HOMESCHOOLING? Annual Evaluation, Educational Progress, HIGH ACCOUNTABILITY for how the Funds are spent! Cross Referenced with APD. Cross over with the McKay Funds. 

Watch and Hear some HEROIC MOMS provide PUBLIC TESTIMONY
Julie Kleffel ROCKED the House!! 
The Bill Passed!! 

This is GREAT NEWS that will mean FINANCIAL HELP to many parents raising Children with Special Needs!

*PASS IT ON SO THOSE INTERESTED KNOW ABOUT THIS EXCITING NEW BILL*
http://www.myfloridahouse.gov/VideoPlayer.aspx?eventID=2443575804_2014031151&committeeID=2711 
CLICK HERE to view WARRIOR MOMS ADVOCATING FOR THEIR CHILDRENS' EDUCATIONAL RIGHTS IN SUPPORT OF PERSONAL LEARNING ACCOUNTS.

Saturday, May 4, 2013

NDSS ~ MY GREAT STORY! One Siblings Act of CHANGE.



Published on Mar 21, 2013
The National Down Syndrome Society's (NDSS) My Great Story Video Project features 10 short videos are based on submitted stories to the NDSS My Great Story public awareness campaign. The goal of the My Great Story campaign is to ignite a new way of thinking about people with Down syndrome by sharing stories written by and about them. NDSS and the Institute for Community Inclusion (ICI) at UMass Boston collaborated with Emmy Award winning filmmaker, Melanie Perkins McLaughlin, to create the Video Project.

One Sibling's Act Leads to Change stars 9-year-old Trent Briggs and his 12-year-old sister Megan. When he discovered that Scholastic Dictionary had used the word "retarded" in its definition of Down syndrome Trent took action. He wrote to Scholastic and asked them to change the definition using the term "intellectual disability" instead. Trent and Megan show the rest of us how one person can inspire another to create positive change.

Learn more about the My Great Story Video Project at www.ndss.org/storiesvideoproject.

Tuesday, April 23, 2013

Nancy speaking before Broward School Board 4/23/13 pleading for help a month before withdrawing her from Public Education in Broward!



This is me speaking for the first time publically to Broward County School Board a month before I completely WITHDREW Mariah from Broward Public Education! In my speach you can see I was PLEADING for help to look into what was happening to me at Parkway Middle School via the IEP "PROCESS" here in Broward County! I also explain how Mariah wasn't even allowed to take the FCAT anymore and wasn't ever told by the schools ESE Specialist, Ms. Chiante Roundtree-Jones as to exactly when the ALTERNATE ASSESSMENT would be going on. (*the Special Needs FCAT testing) The schools ESE Specialist said, that Mariah wasn't in school on the day that the 'letter' was sent home. Instead weeks later, Mariah did bring home a letter informing us when the "regular" FCAT testing times would be going on. 

In Elementary school, Mariah had always taken the "regular" FCAT since the 3rd grade and twice in 5th grade, because I thought it would be good for Mariah to have a second year of 5th grade with the same wonderful teacher, Mr. Allagood. Mariah had always been taking the "regular" FCAT, a total of 4 times she took the FCAT before going off to 6th grade at Parkway Middle School. So this year in 6th grade, Mariah wasn't even allowed or was I ever informed when the Alternate Assessment testing dates would be given. I found out later that the Alternate to the FCAT is given to the ESE Students over a 3 week time period, whereas the regular FCAT is given over a shorter time period of just 2 weeks. Not once during the time for testing the Alternate Assessment was our family notified of this testing and it was going on for 3 whole weeks?! That in itself shows the lack of care to test and/or educate a wonderful student like Mariah! 

Mariah loves school and is a wonderful student any good teacher would be thrilled for the challenge of teaching her in a diversified classroom as they all should be today! Not all her teachers should have been chosen for her as there have been some really GREAT TEACHERS over the years and certainly Mariah has has some really lousy/rotten teachers too! More good teachers though, but the bad ones can really make life miserable for both student and parent! Her intensive reading teacher in 6th grade at Parkway Middle had no desire to really help Mariah continue with increasing her reading skills. An intensive reading teacher that only gives "F's" to a student with an IEP should be fired! Upsetting to say the least, because READING is one of the most important academic skills a student needs to learn to get an education! That reading teacher's only goal for Mariah was to show she wasn't making progress to push her into a NON-PHONICS BASED reading program the ESE Department was pushing on many of the Middle School Students, that I wanted no part of for my girl. This "curriculum" was not something I agreed to, if SB 1108 had been in place, I would have had to 'sign-off' yes or no to that curriculum. As of July 1st, 2013 that Senate Bill will be law! 

So this year, not only did my daugher, Mariah not get to take the "regular" FCAT, she also wasn't allowed to be tested the one given to Special Needs students, the Alternate Assessment to the regular FCAT. Why was this allowed to even happen to Mariah? Is it because both Mariah and I went up to testify before the Florida Senate in March on SB 1108? Is it because she has Down syndrome, is it because her mom is an outspoken Advocate for students with Down syndrome and other unique learning challenges? I would like to know how our public school district can get away with such nonsense!

Ultimately....one month later I decided to completely WITHDRAW my daughter from PUBLIC EDUCATION because I have experienced such a total lack of care to ACADEMICALLY EDUCATE my daughter as she gets older. Being in Middle School and being included in regular general education classes is NOT WHAT THIS DISTRICT WANTS FOR STUDENTS WITH DOWN SYNDROME and certainly they don't care to work collaboratively with their parents.

The new Senate Bill 1108 if it had been in place before this school year or before, I never would have had to go through the nonsense I was being forced to endure at the many (too many) IEP meetings Parkway Middle School put me through. 

Mariah and I going to the Florida Capitol a month previously on March 18th, 2013 to testify before the Florida Senate on why we thought this Bill is an absolute must to have in place to protect parents rights to help our children receive a "world class education"? That is what is advertised throughout our public school district, on their phone lines when we are put on hold and on the District website. A world class education is for those without disabilities I think is what they really mean.

In this video, Mariah had just spoken before me, the same exact speech she read to the Florida Senate Education Committee a month before on March 18th, 2013. I will post her first school board speech when I have a copy of it. This was Mariah's second time public speaking and she did fabulous job! She has told me she loves speaking in front of a people! So through it all, we both have become Public Speakers. Mariah and I both have now had parts of our Senate Education Committee testimony from the the Florida Capitol speech aired on National Public Radion-NPR. Mariah telling the Florida Senate that she wants a REAL HIGH SCHOOL DIPLOMA and that she wants to one day go to College. Her cute voice and her very first public speech has been aired and heard across the Country. I believe she speaks for many with Down syndrome and special needs education in general. 

Mariah you are on your way to becoming a National Speaker, getting on NPR is a start! I am so proud of my daughter for rising to the challenge of getting up and speaking before the public and having your voice heard! You speak for many like you! 



Please comment if things like this are or have been happening to your child's education, I would love to hear from my readers. Share my story too!


Tuesday, October 23, 2012

Hillsborough County School District ~ Student with Down syndrome found dead after walking off campus.

Click here for full story about JENNY in Riverview  
"Jennifer had been at the school for about six weeks, Cobbe said. She had very limited verbal skills and could speak only Spanish. Earlier in the day, she had hidden beneath the bleachers and had to be coaxed out by the physical education teacher, Cobbe said. The girl often would run away and hide when she heard strange voices so the sheriff's office had Jennifer's mother walk with searchers, calling out her daughter's name through a bullhorn. The father called other friends and relatives to make sure none had picked up the girl from school." 

She was in a class with 20 Special Needs Students with 6 (SIX) AIDES and the little girls classmates TOLD them that they saw that 'Jenny' walked away....and the SIX....1, 2, 3, 4, 5, 6 adult aides there to WATCH 20 STUDENTS and not one of them was WATCHING Jenny leave the area as well? Someone should have been paying better attention so they could have at least RUN AFTER HER!!!?? I can't stress enough to those that DON'T HAVE A BEAUTIFUL CHILD WITH DOWN SYNDROME HOW MUCH YOU HAVE TO WATCH our precious children 24/7! I guess with the 1:3 RATIO for that class of 20 still wasn't enough eyes for Miss Jenny!!

I have sat in on many IEP meetings for families with a child with Down syndrome, having much discussion about the need for an aide for our kiddo's. Parents concerns seem to be viewed as being overly protective or something other than a real concern of our parents for their child's safety while at school. The "IEP team professionals" that work for public school districts more often than not, want to disregard parents pleas for help to make sure their son or daughter is watched more closely because the parents KNOW their child WANDERS OFF and RUNS QUICKLY when they do wander off. Parents KNOW their child the best, parents are the EXPERTS on their child at IEP meetings. IEP meetings many times end without the parents knowing exactly who will be responsible for the safety or our children once they come to school. Many times parents are not allowed to talk or communicate with the child's aide....if they do finally get one. Parents concerns need to be taken seriously. Our children's lives depend on Adults keeping them safe!

Attending advocacy trainings with speakers telling us to make sure you get it written on the IEP about needing an Aide, but for whatever reason our Public School Districts are getting very clever to make sure parents are not able to get 'it written into the IEP document' that their child needs the support of their own aide. This is real folks, safety of ALL students when they leave home to attend school everyday is a real issue more and more today! When certain individuals with certain types of 'special needs' like Autism and Down syndrome, they are more likely to WANDER OFF or LEAVE a classroom or the school campus.

Having had to call the police on a couple of occasions myself because my sweet little girl with Down syndrome was 'missing' for more than 6 minutes was the most helpless feeling a parent should ever have to go thru. I know how blessed and lucky we were that my girl was found, but in this most recent case in Riverview, Florida with Miss Jenny....her parents worst nightmare came true.

I am so sad and so sorry for her parents, family and friends to know that Jenny will not be coming home from school today! 

Prayers to Jenny's family!! 
{{oxoxox}}

Click here for full Bay News 9 article on: Answers sought in Down syndrome girl's death