Tuesday, October 23, 2012

Hillsborough County School District ~ Student with Down syndrome found dead after walking off campus.

Click here for full story about JENNY in Riverview  
"Jennifer had been at the school for about six weeks, Cobbe said. She had very limited verbal skills and could speak only Spanish. Earlier in the day, she had hidden beneath the bleachers and had to be coaxed out by the physical education teacher, Cobbe said. The girl often would run away and hide when she heard strange voices so the sheriff's office had Jennifer's mother walk with searchers, calling out her daughter's name through a bullhorn. The father called other friends and relatives to make sure none had picked up the girl from school." 

She was in a class with 20 Special Needs Students with 6 (SIX) AIDES and the little girls classmates TOLD them that they saw that 'Jenny' walked away....and the SIX....1, 2, 3, 4, 5, 6 adult aides there to WATCH 20 STUDENTS and not one of them was WATCHING Jenny leave the area as well? Someone should have been paying better attention so they could have at least RUN AFTER HER!!!?? I can't stress enough to those that DON'T HAVE A BEAUTIFUL CHILD WITH DOWN SYNDROME HOW MUCH YOU HAVE TO WATCH our precious children 24/7! I guess with the 1:3 RATIO for that class of 20 still wasn't enough eyes for Miss Jenny!!

I have sat in on many IEP meetings for families with a child with Down syndrome, having much discussion about the need for an aide for our kiddo's. Parents concerns seem to be viewed as being overly protective or something other than a real concern of our parents for their child's safety while at school. The "IEP team professionals" that work for public school districts more often than not, want to disregard parents pleas for help to make sure their son or daughter is watched more closely because the parents KNOW their child WANDERS OFF and RUNS QUICKLY when they do wander off. Parents KNOW their child the best, parents are the EXPERTS on their child at IEP meetings. IEP meetings many times end without the parents knowing exactly who will be responsible for the safety or our children once they come to school. Many times parents are not allowed to talk or communicate with the child's aide....if they do finally get one. Parents concerns need to be taken seriously. Our children's lives depend on Adults keeping them safe!

Attending advocacy trainings with speakers telling us to make sure you get it written on the IEP about needing an Aide, but for whatever reason our Public School Districts are getting very clever to make sure parents are not able to get 'it written into the IEP document' that their child needs the support of their own aide. This is real folks, safety of ALL students when they leave home to attend school everyday is a real issue more and more today! When certain individuals with certain types of 'special needs' like Autism and Down syndrome, they are more likely to WANDER OFF or LEAVE a classroom or the school campus.

Having had to call the police on a couple of occasions myself because my sweet little girl with Down syndrome was 'missing' for more than 6 minutes was the most helpless feeling a parent should ever have to go thru. I know how blessed and lucky we were that my girl was found, but in this most recent case in Riverview, Florida with Miss Jenny....her parents worst nightmare came true.

I am so sad and so sorry for her parents, family and friends to know that Jenny will not be coming home from school today! 

Prayers to Jenny's family!! 
{{oxoxox}}

Click here for full Bay News 9 article on: Answers sought in Down syndrome girl's death

Friday, October 19, 2012

Just Like You! ~ Cool short video



THANK YOU Down Syndrome Guild of Greater Kansas City!! 
This is a PERFECTLY BEAUTIFUL short video especially for October being Down syndrome Awareness Month!! 

Thursday, October 4, 2012

October is National Down syndrome Awareness Month ~ My Recommendation for Broward County Public Schools

My Recommendations for Broward County Public Schools: Provide training that is ACADEMICALLY meaningful to those that will be working with students that have Down syndrome. 

Our children are not lab experiments to go to school only to have LOGS & CHECK MARKS taken on them for doing every little thing pertaining to how 'they act' while in school.

If only schools staff would track what they are TEACHING ACADEMICALLY to our Children instead of looking for so much "stuff" that they (school teachers, aides, administrators) turn into and create into negative behaviors they then want to focus in on instead of teaching our kiddo's with DS.

School staff are encouraging and creating many of the negative behaviors they are tracking!!

Our children with Down syndrome need sound academic support, not negative 'data' created that only tracks every little move they do.

What about tracking and creating data that shows; WHAT ARE THEY TEACHING TO OUR CHILDREN.

Teachers and all staff working with students with Down syndrome NEED DOWN SYNDROME SPECIFIC TRAINING provided by NATIONAL EXPERTS!

Has anyone from Broward County Public Schools ever attended any Down syndrome National Conventions?

How many teachers and aides actually attend Down syndrome specific training...bet there are more teachers and staff attending and looking into Autism specific training from National experts.

Our students with Down syndrome need academic support with sound researched based practices.

Bring in National EXPERTS to TRAIN this District on, "How to teach students with Down syndrome."

Thanks ~ that would be my recommendation for Broward schools. ....especially those teaching and working with students with Down syndrome. That includes the LEA and AREA PROGRAM SPECIALISTS that attend our children's IEP meetings. THEY NEED THE TRAINING THE MOST because they are the ones CONTROLLING OUR CHILDREN'S IEP MEETINGS TODAY here in Broward County.


OCTOBER IS NATIONAL DOWN SYNDROME AWARENESS MONTH ~ Let's do something POSITIVE for our Students and their families this month especially!!